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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My ME/CFS experience
- Author cfs since 1998
- Create date
- Updated
ME/CFS started in 1998 with primary Epstein-Barr Virus infection (infectious mononucleosis) in high school. Acute symptoms for ~6 months.
Improved slightly over the years, but peaked about 60-ish on David Bell's scale. Went on high-dose Olive Leaf Extract and immune stimulants in 2009-2010 but...