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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Blog entries by Bob
Continuing my recent theme of mild rants, and letting off steam, I'm going to be a bit controversial here, and put this out there for philosophical discussion...
Thinking about this recent post further, I think CBT is very much a political tool, in relation to CFS.
It is used as a political...
Feedback, corrections, discussion and criticism are very welcome.
I've also attached a PDF version for easy printing.
Contents
Preface
Introduction
Contamination theories
The WPIs methodologies
Lack of sequence variation
John Coffins conclusions regarding the origins of XMRV (A...
I've collated a list of the most significant, published and unpublished, international positive XMRV studies that I know about, including the European and Japanese research studies ... along with a very brief summary of each of them.
I've included the links to the published papers, or to the...
MLV = Murine Leukaemia Virus. MLV's are mouse retroviruses that cause cancer in certain mice.
MuLV - MLV's are also known as MuLV's.
mERV - Some types of MLV's are also known as mERV's (mouse endogenous retroviruses), but not all MLV's are endogenous.
XMRV is a human retrovirus and...
I can't guarantee that this blog is 100% accurate because I'm not an expert in mouse virology! But I think it's all accurate, after having done some heavy-duty reading about it all. This is purely a discussion of my understanding of the subject, as a lay person.
Any comments or corrections are...
Hi everyone,
I was asked to write an 'XMRV for Dummies' on another forum (i.e. a simple explanation of XMRV research to date)...
I thought it might also be helpful for some people on this forum, so here it is...
It's such a complex subject, and I've written a lot of it from memory so there...
MLV related viruses - a simpler explanation
For a more in-depth discussion of MLV-related viruses, please see my previous blog entry, here: MLV-related viruses - an explanation
MLV = Mouse Leukaemia virus
MLV's are mouse retroviruses that cause cancer in certain mice.
Judy...
What the FDA/NIH study means to us... my personal take on the situation...
Hi everyone,
It seems to me that this news has sent our world into a bit of a spin... it has mine anyway...
The results of the study weren't quite what we were expecting, and we are not quite sure what to make of...
This blog relates to the paper published by the NIH/FDA in USA which found MLV-related viruses in 86% of ME patients, published on 23rd August 2010. http://www.pnas.org/content/early/2010/08/16/1006901107.full.pdf+html
I've now also written a much briefer explanation of MLV-related viruses...