sarahg
Admin Assistant
- Messages
- 276
- Location
- Pennsylvania
Here is an interesting tidbit that I got from my DR. today (1'st post xmrv) that I had not heard elsewhere- He has been in email contact with Peterson and apparently they must have tested some of the XMRV positive blood samples for coinfections and the 2 major ones were CMV and HHV-7. My doctor was quite intrigued by the HHV-7 aspect, although in my detox addled brain I can't remember why, but he felt that was a big thing. I need to start bringing a recorder, I think! (as all my notes say is peterson, 2 maj. coinfect CMV HHV7)
I have never been tested for HHV-7 but it sounds like I will be the next time I go for blood. (have high HHV-6, Parvo B-19, and EBV) At least, thank god, I am negative for CMV for now.
Has anyone else heard anything about this? I am keeping my Dr. anonymous on this thread because I don't know if this was something he was supposed to tell patients or not.
Not surprisingly, my doctor told me to wait until more studies come out and there is a test my insurance will pay for before I get too excited. He is obviously excited by the results himself, but does not want to disappoint later on. I think that is what we are seeing from a lot of doctors- that so many studies have come out that seemed like they were going to blow the lid off this thing, and then fizzled. They are all so worn out by those experiences that when something like this happens they can't help but hold their breath. He was also impressed by the fact Peterson gave a presentation at CFSAC, which, oddly, my doctor had not known existed until this presentation. (not generally one to get involved in the politics, I think, but, oh, how he loves all the studies)
I have never been tested for HHV-7 but it sounds like I will be the next time I go for blood. (have high HHV-6, Parvo B-19, and EBV) At least, thank god, I am negative for CMV for now.
Has anyone else heard anything about this? I am keeping my Dr. anonymous on this thread because I don't know if this was something he was supposed to tell patients or not.
Not surprisingly, my doctor told me to wait until more studies come out and there is a test my insurance will pay for before I get too excited. He is obviously excited by the results himself, but does not want to disappoint later on. I think that is what we are seeing from a lot of doctors- that so many studies have come out that seemed like they were going to blow the lid off this thing, and then fizzled. They are all so worn out by those experiences that when something like this happens they can't help but hold their breath. He was also impressed by the fact Peterson gave a presentation at CFSAC, which, oddly, my doctor had not known existed until this presentation. (not generally one to get involved in the politics, I think, but, oh, how he loves all the studies)