Treeman
Senior Member
- Messages
- 796
- Location
- York, England
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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2million USA citizens and UK citizens are housebound/ and worse with LC. With those numbers growing. It will surely be impossible to ignore.
I keep seeing this written, but yes it is possible to ignore. Just look at the history of ME/CFS. The same issues still exist, medical science is not at a point to explain it and until it does nothing changes.
I have posted a link elsewhere on all the trails taking place around the world trailing existing drugs to try on LC, the UK wasent on the list, they're doing very little.
despite that, I'm still hopeful the treatments will be found.
Any idea what this study is about? Mentions becoming a Participant, its UK only and was looking for up to 25,000 people i thinkWhilst I wrote above that the UK is doing little, I was a ware it was doing something. The link below describes what they are doing after the Covid 19 outbreak and for covid (not specifically ME/CFS, but some expect any positive outcomes could benefit ME/CFS)
New research into treatment and diagnosis of long COVID
- 15 new studies across UK to expand research that will support thousands of vulnerable people
- Nearly £20 million for research projects will help improve understanding of long COVID and identify effective treatments
- Projects include the largest long COVID trial to date which will involve over 4,500 people
https://www.gov.uk/government/news/new-research-into-treatment-and-diagnosis-of-long-covid
There was something on Twitter which was a "spit test". I did participateAny idea what this study is about? Mentions becoming a Participant, its UK only and was looking for up to 25,000 people i think
Yes I have already taken partThis one? https://www.decodeme.org.uk/
I've taken part. Message them and see if you can join. They're looking for genetic based mutations to provide some insight, as I understand it.
As Slushiefan said, there are new discoveries and advances all the time, at an increasing rate. AI has the potential to push that rate dramatically higher,
Has there been any activity on the AI front that people know of? I use some AI software for image based stuff (Stable Diffusion) and can see that the graphics cards that do the grunt work are basically very affordable (relatively speaking) and could promote a homebrew culture of medical research, should any of the biological research become open source.
https://www.healthrising.org/blog/2023/10/21/ai-driven-chronic-fatigue-syndrome-clues/Has there been any activity on the AI front that people know of? I use some AI software for image based stuff (Stable Diffusion) and can see that the graphics cards that do the grunt work are basically very affordable (relatively speaking) and could promote a homebrew culture of medical research, should any of the biological research become open source.
You think i could join with DNA file already from 23+me?This one? https://www.decodeme.org.uk/
I've taken part. Message them and see if you can join. They're looking for genetic based mutations to provide some insight, as I understand it.
You think i could join with DNA file already from 23+me?