Which tests to ask for RE EBV and HHV6?

[Forummember9922]

I am curious which HHV6 or EBV tests I might ask for with an upcoming infectious disease doctor?

Any advice is appreciated

Additional backstory - I had a first time HSV1 outbreak with my CFS onset and was put on Valtrex. I was not sure what it was doing though and certainly have not felt like my former self since onset.

I recently lowered Valtrex to see how I feel and I feel terrible, realizing I was getting relief from it- so I am going to take it until my next appointment.

When I look at the heatmap of antivirals and their effectiveness, I see Valtrex is more effective at targeting EBV than HHV6- so maybe that means I should be gunning against EBV. I also might start a personal trial of Tenofovir soon, which sounds like a lot if I combine it with Valtrex, So i will have to sort that out. Wondering if I should try and get Valcyte though. I think it's progress how many arrows point to these herpes viruses. I think the reaffirmations of old findings are cementing the truths..

 

[Hip]

The viral tests usually used by ME/CFS doctors are antibody tests. A full set of tests would include coxsackievirus B, echovirus, Epstein-Barr virus, cytomegalovirus, HHV-6, and maybe parvovirus B19 and Chlamydia pneumoniae.

If you look at the viral testing section of this ME/CFS roadmap, more details are provided.

 

[Forummember9922]

Thank you

 

[Judee]

I would see if the doctor will test your immunoglobulin levels too. Some of us have deficiencies. For instance I have IgM deficiency and have been told that could possibly affect the antibody testing result accuracy.

Edit: If you can possibly get Valcyte, I would.

 

[Forummember9922]

I would see if the doctor will test your immunoglobulin levels too. Some of us have deficiencies. For instance I have IgM deficiency and have been told that could possibly affect the antibody testing result accuracy.

Edit: If you can possibly get Valcyte, I would.

I may try Tenofovir first and if I dont improve on that for 6 months then Valcyte 6 months. My current strategy blueprint anyways.