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I am living in a college hall. I submitted documentation saying I needed to be in a catered hall but instead I was placed in a hall that is .2 miles away from the dining hall. I think they thought it was fine because it's technically "on-site" even if not in the same building. As you guys know, this is very far for an ME patient.
I have been getting worse forcing myself to walk to get food and over break, I have not recovered to my level of health before starting school. On the last day of classes, I saw the dining hall staff walking out with food presumably to take it to disabled students. I was in tears outside the dining hall when I realized they had been taking food to other students this whole time (we all live about .2 miles away, maybe some .1) and I was making myself sicker forcing myself to walk. Also, there are stairs at the dining hall and in order to use the elevator I have to call somebody from staff to come help me every time. With the cognitive problems of ME I barely get to the dining hall and to call somebody every time and wait in the cold I'm sure I would end up missing more meals than I am. With all of that, I have just been forcing myself to walk up the stairs as it is less hassle than calling for help every day.
When I asked the disability coordinator for help she denied that the food was being taken to students but then also said that food was sometimes taken to students with "temporary" and "infectious" illnesses (this sounds like the flu to me which is infuriating). My friend said this is ridiculous because if somebody was getting cancer treatment over a couple of years that also wouldn't be temporary or infectious but they would probably not hesitate to help that student. I have a hard time believing that I'm the first disabled student with this problem. There have to be other students in my situation who did not starve.
Anyway, is it reasonable to expect that they bring food to me for some meals? For example, four days a week? Ideally, I would get every meal every day but I think with the way they are acting that's not going to happen.
Are there any other CFS people in university on this thread? What are some of the other accommodations you have been able to get from your uni?
The problem is I don't even know what to ask for. This food thing, I didn't even know that was something I should have been fighting for until I saw they were taking food to other students.
I have been getting worse forcing myself to walk to get food and over break, I have not recovered to my level of health before starting school. On the last day of classes, I saw the dining hall staff walking out with food presumably to take it to disabled students. I was in tears outside the dining hall when I realized they had been taking food to other students this whole time (we all live about .2 miles away, maybe some .1) and I was making myself sicker forcing myself to walk. Also, there are stairs at the dining hall and in order to use the elevator I have to call somebody from staff to come help me every time. With the cognitive problems of ME I barely get to the dining hall and to call somebody every time and wait in the cold I'm sure I would end up missing more meals than I am. With all of that, I have just been forcing myself to walk up the stairs as it is less hassle than calling for help every day.
When I asked the disability coordinator for help she denied that the food was being taken to students but then also said that food was sometimes taken to students with "temporary" and "infectious" illnesses (this sounds like the flu to me which is infuriating). My friend said this is ridiculous because if somebody was getting cancer treatment over a couple of years that also wouldn't be temporary or infectious but they would probably not hesitate to help that student. I have a hard time believing that I'm the first disabled student with this problem. There have to be other students in my situation who did not starve.
Anyway, is it reasonable to expect that they bring food to me for some meals? For example, four days a week? Ideally, I would get every meal every day but I think with the way they are acting that's not going to happen.
Are there any other CFS people in university on this thread? What are some of the other accommodations you have been able to get from your uni?
The problem is I don't even know what to ask for. This food thing, I didn't even know that was something I should have been fighting for until I saw they were taking food to other students.
