- Messages
- 87
- Location
- Kaneohe, HI
As time goes on I feel it is less and less likely that I have CFS. Mostly because my PEM is mild to nonexistent in regards to physical exercise (mental exercise it's there in full force, hills/stairs exhaust me if that counts). I have an appointment on March 6th, with my internal medicine doctor where I am going to bring up the majority of my issues again to see if anything further can be done (I'm skeptical).
You can read some of my history here: http://forums.phoenixrising.me/index.php?threads/reality-of-my-me-cfs.30679/
I am currently on medication for primary hypersomnia (MSLT diagnosed), acid reflux (no tests have been done to validate), asthma (methylation test/medication does not help 'related' symptoms), and dry/light-sensitive eyes. Modafinil, Nexium, Advair, Singulair, Claritin, Albuterol, and refresh lubricating drops.
My most bothersome symptoms at this time (outside of fatigue), are sporadic chest pain (noticeably worse after laughing, no other 'triggers' observed), increased pelvic pain (to include increased cramping during menstruation), a weird uncomfortable (sometimes painful) feeling near my larynx, and of course cognitive difficulties (concentration, memory).
I still get short of breath and cough despite having 'mild' asthma and being on a multitude of asthma medications. I've also started having trouble sleeping again.
In the last year my tests that are relevant/abnormal were:
October 2014
Allergy Screen (I'm allergic to grass and dust mites)
Dermatophagoides Farinae Ab.IgE, Serum Quantitative 1.59 Higher Than Normal kU/L (0-.34)
Dermatophagoides Pteronyssinus Ab.IgE, Serum Quantitative 2.42 Higher Than Normal kU/L (0-.34)
Grass Bahia Ab.IgE, Serum Quantitative 6.80 Higher Than Normal kU/L (0-.34)
Grass Bermuda Ab.IgE, Serum Quantitative 2.38 Higher Than Normal kU/L (0-.34)
Grass Johnson Ab.IgE, Serum Quantitative 2.04 Higher Than Normal kU/L (0-.34)
Grass Blue Ab.IgE, Serum Quantitative 6.03 Higher Than Normal kU/L (0-.34)
Grass Rye Perennial Ab.IgE, Serum Quantitative 5.04 Higher Than Normal kU/L (0-.34)
Grass Timothy Ab.IgE, Serum Quantitative 4.56 Higher Than Normal kU/L (0-.34)
August 2014
Thyrotropin, Serum or Plasma Quantitative 0.761 mcIU/mL (.35-5.0) Normal
Thyroxine.Free, Serum or Plasma Quantitative 1.05 ng/dL (.8-1.6) Normal
July 2014
Cortisol, Serum or Plasma Quantitative 9.1 mcg/dL(not reference provided)
Chest X-Ray: PA and lateral radiographs of the chest were obtained. The mediastinum and cardiac silhouette are within normal limits. Costophrenic angles are sharp. No evidence of pneumothorax, pleural effusion or airspace disease. There is no free air under the diaphragm. The soft tissues and bony structures are unremarkable.
April 2014
Ferritin, Serum or Plasma Quantitative 28.81 ng/mL (4.63-204)
March 2014:
CARDIO, ECHOCARDIOGRAM:
M-mode and 2D findings: The technical quality of the study is adequate. The rhythm during the study is sinus rhythm. Normal cardiac chamber dimensions are present. Normal resting LV systolic and diastolic function. Structurally and functionally normal cardiac valves for age. No masses, thrombus or vegetations. No pericardial or pleural effusions. IVC demonstrates normal size and respirophasic response.
Doppler and color Doppler findings: The peak velocity across the aortic valve is 1.5 m/s. There is no aortic insufficiency. There is no mitral regurgitation. There is no mitral stenosis. Trace tricuspid regurgitation is present. Unable to estimate the resting pulmonary artery systolic pressure. The peak velocity across the pulmonic valves is 1.1 m/s. There is trace pulmonary insufficiency. There is no color flow Doppler mapping evidence of intracardiac shunting.
Conclusions: 1. Normal chamber dimensions 2. Normal resting left ventricular systolic and diastolic function with an estimated ejection fraction of 60 to 65% 3. No significant valvular heart disease 4. Unable to estimate the resting pulmonary artery systolic pressure
I have been tested for mono, pregnancy, STDs, and thyroid problems more times than I can count.
I have had the Borrelia Burgdorferi Ab, Serum Semi-Quantitative test. (I think this is the ELISA test.)
Tests I think I need:
Ferritin
Vitamin D
Western Blot (lyme)
Can anyone think of anything else that might be relevant to ask for?
You can read some of my history here: http://forums.phoenixrising.me/index.php?threads/reality-of-my-me-cfs.30679/
I am currently on medication for primary hypersomnia (MSLT diagnosed), acid reflux (no tests have been done to validate), asthma (methylation test/medication does not help 'related' symptoms), and dry/light-sensitive eyes. Modafinil, Nexium, Advair, Singulair, Claritin, Albuterol, and refresh lubricating drops.
My most bothersome symptoms at this time (outside of fatigue), are sporadic chest pain (noticeably worse after laughing, no other 'triggers' observed), increased pelvic pain (to include increased cramping during menstruation), a weird uncomfortable (sometimes painful) feeling near my larynx, and of course cognitive difficulties (concentration, memory).
I still get short of breath and cough despite having 'mild' asthma and being on a multitude of asthma medications. I've also started having trouble sleeping again.
In the last year my tests that are relevant/abnormal were:
October 2014
Allergy Screen (I'm allergic to grass and dust mites)
Dermatophagoides Farinae Ab.IgE, Serum Quantitative 1.59 Higher Than Normal kU/L (0-.34)
Dermatophagoides Pteronyssinus Ab.IgE, Serum Quantitative 2.42 Higher Than Normal kU/L (0-.34)
Grass Bahia Ab.IgE, Serum Quantitative 6.80 Higher Than Normal kU/L (0-.34)
Grass Bermuda Ab.IgE, Serum Quantitative 2.38 Higher Than Normal kU/L (0-.34)
Grass Johnson Ab.IgE, Serum Quantitative 2.04 Higher Than Normal kU/L (0-.34)
Grass Blue Ab.IgE, Serum Quantitative 6.03 Higher Than Normal kU/L (0-.34)
Grass Rye Perennial Ab.IgE, Serum Quantitative 5.04 Higher Than Normal kU/L (0-.34)
Grass Timothy Ab.IgE, Serum Quantitative 4.56 Higher Than Normal kU/L (0-.34)
August 2014
Thyrotropin, Serum or Plasma Quantitative 0.761 mcIU/mL (.35-5.0) Normal
Thyroxine.Free, Serum or Plasma Quantitative 1.05 ng/dL (.8-1.6) Normal
July 2014
Cortisol, Serum or Plasma Quantitative 9.1 mcg/dL(not reference provided)
Chest X-Ray: PA and lateral radiographs of the chest were obtained. The mediastinum and cardiac silhouette are within normal limits. Costophrenic angles are sharp. No evidence of pneumothorax, pleural effusion or airspace disease. There is no free air under the diaphragm. The soft tissues and bony structures are unremarkable.
April 2014
Ferritin, Serum or Plasma Quantitative 28.81 ng/mL (4.63-204)
March 2014:
CARDIO, ECHOCARDIOGRAM:
M-mode and 2D findings: The technical quality of the study is adequate. The rhythm during the study is sinus rhythm. Normal cardiac chamber dimensions are present. Normal resting LV systolic and diastolic function. Structurally and functionally normal cardiac valves for age. No masses, thrombus or vegetations. No pericardial or pleural effusions. IVC demonstrates normal size and respirophasic response.
Doppler and color Doppler findings: The peak velocity across the aortic valve is 1.5 m/s. There is no aortic insufficiency. There is no mitral regurgitation. There is no mitral stenosis. Trace tricuspid regurgitation is present. Unable to estimate the resting pulmonary artery systolic pressure. The peak velocity across the pulmonic valves is 1.1 m/s. There is trace pulmonary insufficiency. There is no color flow Doppler mapping evidence of intracardiac shunting.
Conclusions: 1. Normal chamber dimensions 2. Normal resting left ventricular systolic and diastolic function with an estimated ejection fraction of 60 to 65% 3. No significant valvular heart disease 4. Unable to estimate the resting pulmonary artery systolic pressure
I have been tested for mono, pregnancy, STDs, and thyroid problems more times than I can count.
I have had the Borrelia Burgdorferi Ab, Serum Semi-Quantitative test. (I think this is the ELISA test.)
Tests I think I need:
Ferritin
Vitamin D
Western Blot (lyme)
Can anyone think of anything else that might be relevant to ask for?