Hey all, question for you. Quick background: Was pretty happy and mostly healthy 25 year old prior to this disease. Plenty friends, successful career and all around was pretty happy. Then I contracted a bad viral flu and got hit with ME. My cognition became horrible over night. Memory loss, severe brain fog and lethargy.
Three months into that I was slowly recovering. But got some sort of stomach infection and among with plenty of digestive troubles I immediately stopped being able to sleep properly. Ever since that my cognitive function has just been going down the drain slowly.
It's come to the point where I have severe memory loss, trouble talking, finding words and almost total inability to visualize things. At times I also lose the ability to read, although that comes and goes but it's getting worse.
I've done all the supplements in the book. My diet is great as well. My biggest success have been through antibiotics.. They gave me some sleep quality and energy back I then recently did a DNA sequencing of my gut flora through uBiome and my flora was in bad shape. I then took things a step further and did fecal transplants since I was having success with antibiotics. I'm in the process of that right now. Due to that my digestion is a lot better. I'm not chronically constipated anymore and I've put on weight. My digestion feels 70% back to normal. But I'm even more lethargic and sleep worse for some reason. Although I'm hoping that will pass once the flora stabilizes again.
But honestly right now I feel quite hopeless, there's very little knowledge about CFS in my home country. And those who have a little knowledge there is over a years waiting list. I don't think the fecal transplants are working well enough and they were sort of my last resort as I've tried everything else.
I have heard people talk about Dr. Meirleir being one of the best CFS doctors so I was wondering what kind of treatment does he advocate?
Thanks
Three months into that I was slowly recovering. But got some sort of stomach infection and among with plenty of digestive troubles I immediately stopped being able to sleep properly. Ever since that my cognitive function has just been going down the drain slowly.
It's come to the point where I have severe memory loss, trouble talking, finding words and almost total inability to visualize things. At times I also lose the ability to read, although that comes and goes but it's getting worse.
I've done all the supplements in the book. My diet is great as well. My biggest success have been through antibiotics.. They gave me some sleep quality and energy back I then recently did a DNA sequencing of my gut flora through uBiome and my flora was in bad shape. I then took things a step further and did fecal transplants since I was having success with antibiotics. I'm in the process of that right now. Due to that my digestion is a lot better. I'm not chronically constipated anymore and I've put on weight. My digestion feels 70% back to normal. But I'm even more lethargic and sleep worse for some reason. Although I'm hoping that will pass once the flora stabilizes again.
But honestly right now I feel quite hopeless, there's very little knowledge about CFS in my home country. And those who have a little knowledge there is over a years waiting list. I don't think the fecal transplants are working well enough and they were sort of my last resort as I've tried everything else.
I have heard people talk about Dr. Meirleir being one of the best CFS doctors so I was wondering what kind of treatment does he advocate?
Thanks
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