GlassCannonLife
Senior Member
- Messages
- 819
I don't mean to start yet another thread on myself and my crash, but I was hoping to get some answers/hear about some experiences.
I had my worst crash ever almost 4 weeks ago now right at the end of my covid illness, and went from housebound to bedbound overnight, now barely getting to the toilet, using phone 5 min at a time every now and then, and eating meals at the foot of the bed etc. I can hardly tolerate speaking to my parents for 30 s at a time without a uncomfortable feeling welling up in my chest.
The PEM/crash has persisted, and actually got a bit worse around day 10 or so despite me doing as little as I could and resting as much as possible.. I've been taking pregnenolone and cumin the entire time to get through the day, and any time I've attempted to reduce the dose I've been hit with waves of crashing. Ie I get a weird feeling of a panic attack type of vibe, extreme wooziness, heart racing, some parasthesia etc. Not sure if they are actual panic attacks but they seem to only occur when I overdo it..
Is this normal, and is just a super intense crash / mass of PEM? Or should I go and get investigated for other things that could be making it this bad..?
I'm currently trying to lower my pregnenolone dose and use a little more cumin if needed to see if I can unearth any useful symptoms, or if I get too bad I plan on going to the ER.. But then I'm not sure what "too bad" is with ME either.
It all feels very overwhelming and is extremely difficult to deal with, especially over such an extended period.. Even when I first crashed to severe I had these type of symptoms for a few days (with 50 mg pregnenolone not 650-700 mg.. And no cumin) at a peak, and then it slowly calmed (with some small waves) over the following 2-3 months. This just feels really weird..
I had my worst crash ever almost 4 weeks ago now right at the end of my covid illness, and went from housebound to bedbound overnight, now barely getting to the toilet, using phone 5 min at a time every now and then, and eating meals at the foot of the bed etc. I can hardly tolerate speaking to my parents for 30 s at a time without a uncomfortable feeling welling up in my chest.
The PEM/crash has persisted, and actually got a bit worse around day 10 or so despite me doing as little as I could and resting as much as possible.. I've been taking pregnenolone and cumin the entire time to get through the day, and any time I've attempted to reduce the dose I've been hit with waves of crashing. Ie I get a weird feeling of a panic attack type of vibe, extreme wooziness, heart racing, some parasthesia etc. Not sure if they are actual panic attacks but they seem to only occur when I overdo it..
Is this normal, and is just a super intense crash / mass of PEM? Or should I go and get investigated for other things that could be making it this bad..?
I'm currently trying to lower my pregnenolone dose and use a little more cumin if needed to see if I can unearth any useful symptoms, or if I get too bad I plan on going to the ER.. But then I'm not sure what "too bad" is with ME either.
It all feels very overwhelming and is extremely difficult to deal with, especially over such an extended period.. Even when I first crashed to severe I had these type of symptoms for a few days (with 50 mg pregnenolone not 650-700 mg.. And no cumin) at a peak, and then it slowly calmed (with some small waves) over the following 2-3 months. This just feels really weird..
