Very part-time work

[fredam7]

Hello,

I dont know if I am posting in the right place. I have a definite ME dx by Mayo and a list of other not so pleasant things. I am on medical disability, SSDI. After IVIG and many things and years of not remembering how to spell my name, I can do some things. However, I forget where I live or for example or the honey jar I have been buying for 2 years. I get confused very easily and seem to live in an alternate universe. I have intractable pain and it drains me so much I am just well, no longer high functioning. My sleep is horrendous. I am extremely tired, you all know about that, but I cant sleep due to severe pain. I was told I cant work , it is not going to happen. However, there are practical concerns. I have no family support, the SSDI is way too low. Does anyone know of any , very part-time work or resources? I am completely at a loss . I have a few masters. I dont know what to do. thank you

 

[linusbert]

maybe something online. i dont know, maybe ask ki for that?

thats what KI came up with:

Spoiler

Part-Time or Flexible Work Options


1. Freelance Writing/Editing/Proofreading


• If they can manage cognitive tasks in short bursts, they could consider remote writing, editing, or proofreading work. Platforms like Upwork or Fiverr might have opportunities. Starting with smaller, simpler tasks could help ease into this.


2. Online Tutoring


• With advanced degrees, they might qualify to tutor or mentor students in their fields of expertise. Websites like Wyzant or Tutor.com could provide a platform.


3. Survey and Research Participation


• Participating in online surveys, market research, or usability testing (e.g., UserTesting, Respondent) can provide small but steady income without requiring intense focus.


4. Virtual Assistance


• Offering minimal, structured support as a virtual assistant for a few hours weekly might be feasible, depending on their energy and pain levels.


5. Art, Crafts, or Digital Products


• If they have a creative skill, selling crafts on Etsy or creating digital products (like templates or artwork) could be an option.





Financial and Support Resources


1. Local Nonprofit Organizations


• Many nonprofits help individuals with disabilities secure additional funding or resources. The local United Way chapter or disability advocacy groups could be a starting point.


2. Supplemental Nutrition Assistance Program (SNAP)


• If not already enrolled, they could apply for SNAP benefits to ease grocery expenses.


3. Disability Advocacy Services


• Organizations like the National Disability Rights Network (NDRN) can assist with navigating SSDI or seeking additional benefits.


4. Energy Assistance Programs


• Utility companies often have assistance programs for those with low income or disabilities.


5. Crowdfunding


• If they feel comfortable sharing their story, platforms like GoFundMe might provide some short-term financial relief.





Support for Cognitive and Physical Challenges


1. Assistive Technology


• Apps or tools that assist with reminders, organization, and navigation can help manage daily tasks despite memory issues. Examples include Google Keep or Todoist.


2. Pain Management and Therapy


• Exploring virtual pain management programs or telehealth consultations with specialists in chronic pain may provide new strategies.


3. Peer Support Groups


• Connecting with others who understand their situation through forums or organizations like MEAction can provide both emotional support and practical advice.





Approach and Execution


• Energy Management: Start small with tasks requiring minimal effort and slowly gauge capacity.


• Network for Ideas: Forums like the one they posted in may have community members with similar experiences and creative solutions.


• Local Job Boards: Sometimes, local classifieds or community boards have low-intensity opportunities like pet sitting, which might fit their abilities.

 

[Mary]

@fredam7 - I think you should first look into how any money you may earn might affect your SSDI benefits. A brief google search says you can earn some money while receiving SSDI, BUT it didn't say if that would cause your benefits to be reduced by the amount you earn. You'll have to do some research on this I'm afraid.

Perhaps you could look into food banks for assistance. Also many areas will offer assistance with utility bills. Getting this kind of help might be easier than finding part-time work and I don't think should affect your SSDI.

Also, try calling 211 - this service is available in many if not most areas and might be able to connect you with some of the assistance you need, including help with food, utilities, etc.

 

[fredam7]

Hi All,

Im looking for specific suggestions. As in, I worked for this online XYZ part time. Thank you!

 

[Florida Guy]

l know people who work from Home doing call Center work. When someone calls they answer questions and work off a script. Are you good with the Phone?

 

[fredam7]

l know people who work from Home doing call Center work. When someone calls they answer questions and work off a script. Are you good with the Phone?

Hi I appreciate your suggestion. I dont think I can tolerate call center, even with all my deficits I would need a lobotomy to do that. I did think about online tutoring but my patience isnt the best and there are very strict schedules, I need flexibility. I could pick up research work I suppose but I doubt I will be given so few hours a week. The pay is much higher so I would be restricted to not many hours. There has to be something. I wonder what others are doing.

 

[forestglip]

I don't know if you can drive, but if so you can do gig work, such as rideshare with Uber. They let you work as little as you want.

 

[fredam7]

Still looking for ideas, please share if you have any experience with this, thank you!