Vanderbilt Autonomic Dysfunction Center

[viggster]

I am pretty sure I have POTS/NMH but it has not been formally diagnosed (CFS/ME has been diagnosed by two specialists). I'm wondering if anyone has gone to Vanderbilt, and if so, was it useful? Did you end up with treatments for your POTS/NMH that were helpful? It seems like they really try to isolate the problem.

http://www.mc.vanderbilt.edu/root/vumc.php?site=adc

 

[Valentijn]

I am pretty sure I have POTS/NMH but it has not been formally diagnosed (CFS/ME has been diagnosed by two specialists). I'm wondering if anyone has gone to Vanderbilt, and if so, was it useful? Did you end up with treatments for your POTS/NMH that were helpful? It seems like they really try to isolate the problem.

http://www.mc.vanderbilt.edu/root/vumc.php?site=adc

I haven't heard anything about them, but they look pretty good. They think CFS might be a form of autonomic dysfunction, so at least they take it seriously instead of assuming it's psychosomatic. They probably don't know anything about ME, however, beyond the CDC definition for CFS.

 

[beaker]

I haven't heard anything about them, but they look pretty good. They think CFS might be a form of autonomic dysfunction, so at least they take it seriously instead of assuming it's psychosomatic. They probably don't know anything about ME, however, beyond the CDC definition for CFS.

Dr. Stratton is at Vanderbilt. He did the ME/CFS Chlamydia Pneumoniae studies back in the 90's and treated patients. Not sure what his current status is. Just trying to point out that Vanderbilt has some hx of ME/CFS patient treatment and research.

 

[Sushi]

I am pretty sure I have POTS/NMH but it has not been formally diagnosed (CFS/ME has been diagnosed by two specialists). I'm wondering if anyone has gone to Vanderbilt, and if so, was it useful? Did you end up with treatments for your POTS/NMH that were helpful? It seems like they really try to isolate the problem.

http://www.mc.vanderbilt.edu/root/vumc.php?site=adc

I've heard mixed reviews. Probably because, at least in the past, you couldn't choose your doctor and some seem better than others. They also have a lot of trials going on and some go there to be in trials.

Best wishes with this,
Sushi