UV intolerance?

[douglasmich]

Since i got MCS i cannot tolerate the sun.

I still go in the sun however because 6 hours after it i have profound mood effects.

WHen i stand in the sun for 10-20min i come back inside and i feel extreme brain fog. I also have severe air hunger and feel like i will have a stroke !

It lasts about an hour then goes away. Sometimes if i take some cayenne pepper it helps.

ANy idea what the hell this is?

 

[Thinktank]

Are you sure it's UV intolerance and not heat intolerance?
Photosensitivity to UV exacerbates some auto-immune diseases like Lupus.

 

[douglasmich]

yes.

I can be inside dying from heat but never have these symptoms.

its only in UV raise. Very bad air hunger / brain fog. it feels like im breathing nothing. quite frightening

 

[ahmo]

From the moment I collapsed w/ ME, I had sun intolerance. It's one of the symptoms of pyroluria. When I supplemented for pyroluria, 5 days later the sun intolerance disappeared. I don't know if this is the same thing you're experiencing. I felt the sun as burning, with the least amount of contact. I also had air hunger, but do not if that was part of the same thing. Zinc, manganese, selenium, molybdenum, p5p were the things I added.

http://www.hputest.nl/evraag.htm Online questionnaire to suspect pyroluria


Short Version (36pg) Pyroluria/Lyme protocol. From Powerpoint doc used during Klinghardt presentation: Lyme Induced Autism

http://www.lymeinducedautism.com/images/1_KlinghardtKPU_09_PX.pdf

 

[IreneF]

I've had the occasional sun allergy, but it's been hives or swelling and rash.

 

[Thinktank]

yes.

I can be inside dying from heat but never have these symptoms.

its only in UV raise. Very bad air hunger / brain fog. it feels like im breathing nothing. quite frightening

Do you tolerate vitamin D? What is your vitamin D level?

 

[douglasmich]

Vitamin D was 190 (40-140) on 10,000 a day so i quit it