BurnA
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http://www.medpagetoday.com/Neurology/GeneralNeurology/55489
Nice to have an article which doesn't mention you know what.
Nice to have an article which doesn't mention you know what.
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Davis said that technology companies in Silicon Valley have also volunteered to help in the analysis phase of his project, known as the Severely Ill Big Data study, for free or at a low cost.
Yes , also interesting that they will share all their results online and with the NIH.Great article.
Interesting little snippet:
...a psychiatrist evaluated Brea and found nothing psychiatrically wrong.
Despite that evaluation, a neurologist -- after ruling out epilepsy and multiple sclerosis -- diagnosed her with conversion disorder. He said her symptoms stemmed from a distant trauma she had somehow forgotten...
... In 2002, he joined Johns Hopkins University as Professor of Neurology and Director of the Division of Neuroimmunology and Neurological Infections.
He joined NIH in 2011 as the Clinical Director of NINDS, the Director of the Translational Neuroscience Center and Chief of the Section of Infections of the Nervous System.
His research focuses on understanding the pathophysiology of retroviral infections of the nervous system and the development of new diagnostic and therapeutic approaches for these diseases.
He has medical colleagues who know his son's story and have read the IOM's report but remain skeptical about ME/CFS. He believes biomarkers will end that debate.
Tannenbaum explained that samples had to be taken within 30 minutes of a testing laboratory to maintain their integrity.
..."There's got to be something ... that's triggered this disease and we're much more likely to cure it if we can go to the original cause."
Some call the study a "fishing expedition" and Davis doesn't argue. "Basically we are looking for almost all types of molecular markers that are reasonably sound to do."
...He also doesn't expect to find a single biomarker, but several biomarkers of different types -- such as metabolites, RNA molecules, or proteins -- that together could serve as the biomarker....
...MF has collected $1.9 million in private donations this year. Davis said that technology companies in Silicon Valley have also volunteered to help in the analysis phase of his project... for free or at a low cost.
"It's really hard to find an answer for something, when you're not looking."
Biomarkers could ultimately be used to screen for the disease and aid in treatment.
Davis is hopeful that his son won't have to wait for a new drug to be developed, but that an existing, FDA-approved therapy could be identified sooner with the help of biomarkers.
Is this a duplicate threadIt's Medpage not Medscape.
Is this a duplicate thread
http://forums.phoenixrising.me/inde...in-cfs-encourages-patients.42168/#post-682161
There's an earlier thread here:
http://forums.phoenixrising.me/inde...al-answers-to-chronic-fatigue-syndrome.42167/
Didn't do too well there
Prob because I typed in medscape I didn't find the other thread
Have asked for threads to be merged.
Jen Brea, on a big reason for the lack of progress:
"It's really hard to find an answer for something, when you're not looking."
The threads have been merged. Please report duplicate threads via the "Report" post button.