UK research?

[Hopeful1976]

I'm in the UK, Suffolk, and I was wondering if there is a set way to become involved in research here (if there is any?!).

 

[charles shepherd]

If you bookmark the Research pages on the MEA website:

http://www.meassociation.org.uk/research2015/

there is a section on volunteering for ME/CFS research - which we update whenever we are notified about biomedical research studies that require people with ME/CFS

The ME/CFS Biobank:

http://cureme.lshtm.ac.uk

which is funded by the MEA Ramsay Research Fund requires blood donor volunteers, including people with severe/housebound ME/CFS, but not at the moment

You are in an ideal position here re the ME Biobank because our research nurse lives in Cambridge and we have funds available to arrange for blood samples to be taken at a person's home if necessary

The samples are then sent to the ME Biobank at the Royal Free Hospital in Hampstead, North London

Hope this is of some help…….

Dr Charles Shepherd
Hon Medical Adviser, MEA

 

[Hopeful1976]

Thanks so much! I'm on to it right now!
Sincerely!

 

[Sbag]

If you bookmark the Research pages on the MEA website:

http://www.meassociation.org.uk/research2015/

there is a section on volunteering for ME/CFS research - which we update whenever we are notified about biomedical research studies that require people with ME/CFS

The ME/CFS Biobank:

http://cureme.lshtm.ac.uk

which is funded by the MEA Ramsay Research Fund requires blood donor volunteers, including people with severe/housebound ME/CFS, but not at the moment

You are in an ideal position here re the ME Biobank because our research nurse lives in Cambridge and we have funds available to arrange for blood samples to be taken at a person's home if necessary

The samples are then sent to the ME Biobank at the Royal Free Hospital in Hampstead, North London

Hope this is of some help…….

Dr Charles Shepherd
Hon Medical Adviser, MEA

it says the samples go to UCL. If I were going to be in London would giving blood there be an option?

 

[charles shepherd]

The ME Biobank is a sub-biobank within the main UCL (= University College London) Biobank at the Royal Free Hospital (which comes under the UCL umbrella)

Samples can be taken in London - when more are needed

CS

 

[charles shepherd]

UCL Biobank at Royal Free Hospital

https://www.ucl.ac.uk/biobank/uclpphysicalbiobank

The 'top ten' collections:

ME/CFS is now in second place!

(But it's not a competition)

Top 10 Sample Collections

Study Name Study type Number of Samples
1 UCL Bioresource NIHR-UCL Bioresource 71,678
2 MECFS U.S. National Institutes of Health 26,341
3 DARE Imperial College NHS 19,843
4 IMON UCL 11,636
5 HCC UCL 4,856
6 NET UCL 3,742
7 Nephrology Royal Free London 3,640
8 TACE2 UCL 2,884
9 Predict NIHR -UCL 2,385
10 Epicure MRC-UCL 2,250


Dr Charles Shepherd
(Chairman - ME Biobank Steering Group)