UK patient surveys by AfME and MEA time for fresh ones?

NelliePledge

Senior Member
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hi all
http://journals.sagepub.com/doi/full/10.1177/1359105317703787 (=online version)

http://forums.phoenixrising.me/inde...-safety-of-get-cbt-and-pac.51405/#post-849218

the surveys referred to here have been important in providing hard evidence of patient views around management including CBT and GET and also on health and social care services. They are all from a few years ago now though. The AFME one published in 2015 based on 2014 data. Things have changed with IAPT and MUS affecting ME patients. Also the lack of action from NICE around GET. Both MEA and AFME should be getting fresh surveys done. I'm going to email them to see if this is on their plans and will report back any response.
 
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