To which organisation should I donate?

[jturner]

Hi All,

I'm writing a will and am planning on leaving money to ME charity.

I want my money to go to a charity/research organisation that does medical research and is focused on finding the cause and a cure for ME.

I've been looking at the following:

http://www.meresearch.org.uk/
http://www.openmedicinefoundation.org/
http://www.meassociation.org.uk/
http://solvecfs.org/
https://www.actionforme.org.uk/

Which of these is most bio focused and is doing actual research/experiments?

Thanks,
JT

 

[charles shepherd]

This is the direct link to the MEA Ramsay Research Fund pages:

http://www.meassociation.org.uk/research2015/

More information on the ME Biobank, part of the UCL Biobank at the Royal Free Hospital in London, that we fund:

http://cureme.lshtm.ac.uk

More info on the MEA Xmas appeal, which involves a collaboration between the Universities of Oxford and Newcastle on metabolomic research:

http://www.meassociation.org.uk/201...hristmas-appeal-starts-today-9-november-2016/

More info on the mitochondrial (muscle) research we are funding at the University of Oxford and have been funding elsewhere this year:

http://www.meassociation.org.uk/201...ondrial-muscle-research-in-mecfs-17-may-2016/

PP slides come from the medical meeting at the John Radcliffe Hospital in Oxford that we helped to arrange and fund back in May

Every little helps!

Dr Charles Shepherd
Hon Medical Adviser, MEA and Chairman of ME Biobank Steering Group

 

[BurnA]

I would recommend :
The Open Medicine Foundation

and don't forget Invest In ME Research
http://www.investinme.org/landerP5.shtml

and there is also Fluge and Mella in Norway but I dont know their link.

They would be my top 3 in terms of biomedical research.

 

[Neunistiva]

I second Open Medicine Foundation.

They've already proven they know what they're doing, and while there are many ME/CFS researchers I am incredibly grateful for, I know there is nothing as motivating as having a sick child, and both dr. Ron Davis and Linda Tannenbaum, CEO/President, have children very sick with ME/CFS.

 

[jturner]

OK, thanks guys. I've taken a decision.

 

[Ben H]

Hi @jturner

I'm a little bit late here, but just wanted to say thanks for thinking of donating, whichever organisation you decide to donate to.

I am openly bias towards OMF as I am involved somewhat in passing the research updates and messages on, and the incredible progress that is being made, but I am also a desperate patient and I had to choose which charity I believed has the best chance. Its a personal choice that is unique to the individual.

However If I can help in anyway, clarifying from an OMF point of view and current research, plans for the future etc, please send me a PM and we can talk!

Anyway enough said-thanks for choosing to donate-whoever that may be to.


B

 

[svetoslav80]

I hope you don't intend to die soon though

 

[Insomniac]

I nominate the CFIDS Foundation
http://www.ncf-net.org/

 

[jturner]

Thanks for the suggestions everyone. I've taken a decision and my will is written!

Frankly, I hope the scientists find a solution a long time before my will get executed!