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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Thought I had POTS: turns out it was SA node dysfunction!

Tella

Senior Member
Messages
397
Pacemakers will not slow down the heart rate—just speed it up and steady it. So it probably would not help POTS patients. Though I did have tachycardia sometimes and it stopped after I got a pacemaker, I don’t know why that would be. Perhaps because my pacemaker will outpace PACs which can lead to various arrhythmias and tachycardia.

POTS is definitely not normal! I see an electrophysiologist and she is familiar with dysautonomia and POTS but not all electrophysiologists would be. Ideally you would look for an autonomic specialist but they are very rare. You could phone local electrophysiologists and ask if they would treat the heart manifestations of autonomic dysfunction. I hope you find someone!
Thanks so much!