The Lost Years

[Jan]

26 years and 3 months, no remission.

 

[TigerLilea]

It'll be 26 years for me in March 2017. Also, no remission.

 

[Wildcat]

.
21 Years and 1 month. No remission.
.

 

[halcyon]

Approaching the 3 year anniversary of my ME triggering infection in 8 days. The years pile on uncomfortably fast, at least early on.

 

[frederic83]

10ish years, no remission at all, slowly degrading.

 

[Seven7]

20+ if anybody hasn't told you yet: you guys are freaking heros in my book!!!

Determain, strong and made of the real stuff!!!!!!

 

[Old Bones]

28 years, 2 months, no remission.

 

[Dolphin]

27 years 9 months

Severely affected: 22 years 4 months. No remission.

 

[Snowdrop]

I've been ill for a very long time--decades. Long before I had any idea of what it might be.
I've been housebound/sometimes bedbound the past 10 years. Continuing to deteriorate.

 

[L'engle]

17 years, 3 months, no remission.

 

[Countrygirl]

Thirty-five years next Easter. Bedbound or housebound for about 85% of that time.

 

[Thinktank]

12 years feeling sickly, but "only" 4 years bedridden.

 

[Chrisb]

36 years 5months

 

[Sean]

32 years this past October. My whole adult life.

No remission, never less than maybe 7.5/10 severity, usually worse.

 

[Hajnalka]

This month 14 years (from age 22).

 

[Marco]

Age 23 to 54 so far. No remission and several step changes downwards in functioning.

C'est la vie (or not).

 

[lilpink]

In the New Year I will enter year 47 of this disease, and year 23 of being mainly housebound. In the early years I had some remissions, of a sort, to about 75 to 80% well for short tranches of time, perhaps 18 months on 3 occasions (something I can only dream about now) . Since 1994 my health has continued on a downward trajectory. I have never had one day where my disease hasn't impacted my life since 1969.

 

[Valentijn]

Nearly 6 years for me.

 

[Marky90]

Two and a half years. Feels like a decade!

 

[lauluce]

26 years and 3 months, no remission.

so sad, I'm rally sorry for you me, 18 years sick, since 13 years old, I had ME as a child, as a teenager and as an adult. As a consequence of that, I really don't know what mi potential in life was, i have no clue of how strong and intelligent I could have been as an adult, since I have both cognitive and physical symptoms