the best treatments I've found

MonkeyMan

Senior Member
Messages
424
The best "treatments" I've found:

1) A warm, 10-15 minute shower. I feel really good after it, and more cognitively alert. Effects last about an hour.
2) Edible THC gummies. My ticket to feeling good for a day. Just have to be prepared to be mildly depressed the next day.
3) Low humidity weather. Ahhh, I can breathe again. And wow, does that help my energy.
4) Deep breathing exercises. They noticeably reduce brain fog and improve my cognitive function.

Several of these suggest to me that ME/CFS, at least in my case, is closely tied with poor circulation / inadequate oxygen in my bloodstream.

Anyone else have similar experiences/results?
 

Shanti1

Administrator
Messages
3,513
When I was first diagnosed with ME/CFS, using meds that increased brain circulation such as nimodipine, pentoxifylline, and tadalafil, and inhaled oxygen were helpful and I often had the feeling that my brain was starved of oxygen.

I also invested in a pulse-ox that monitored my oxygen and pulse throughout the night and downloaded a graph to my phone in the morning. I discovered that I didn't have sleep apnea per se (also had a negative sleep study), but that I would have occasional, isolated severe episodes with oxygen dropping well below 80. When these happened, I would wake up with very extreme brain fog and hung over feeling. I set my pulse-ox to vibrate if my oxygen dropped below 92, and that helped me some.

My ME/CFS has morphed over time as I've worked to underlying infections, food sensitivities, and deficiencies. The things that help me now may also work to increase blood flow to the brain, but I think they help me for different reasons or in addition to that mechanism. I no longer have that oxygen starved feeling. I only use inhaled oxygen now if I have an oxygen deprivation episode at night, but they rarely happen now.

For inhaled oxygen, if I just want a quick hits, I used Oxygen Boost, which is canned, compressed oxygen found on Amazon. When I was using oxygen more frequently, I used an oxygen concentrator machine.
 

Cipher

Administrator
Messages
1,233
I also invested in a pulse-ox that monitored my oxygen and pulse throughout the night and downloaded a graph to my phone in the morning. I discovered that I didn't have sleep apnea per se (also had a negative sleep study), but that I would have occasional, isolated severe episodes with oxygen dropping well below 80. When these happened, I would wake up with very extreme brain fog and hung over feeling. I set my pulse-ox to vibrate if my oxygen dropped below 92, and that helped me some.
I'm curious, what's the name of that product?
 
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