I have posted a bit about this before especially in my abdomen but I have swollen lymph nodes VISIBLE from my cheeks to my thighs. They swell under my chin to the size of golfballs and inhibit my speaking. My cheeks the salvia glands swell to the point I can't smile. My abdomenal glands swell up to an etire 2 dress sizes but swollen hip pads(not sure if there are nodes there or not) Also my swelling throughout th lymphatic pathways and when I get examined all the doctos DISMISS them as "shoddy" , CT scans show virtually nothing especially where they are largest and hurt the most.
How could this be happening ?They can be seen in pictures! I can't hold my arms at my side because they are so so under my armpits. And yet they dont' show and doctors don't think they feel them! I am stunned.
I did have a nuclear test done, and indium scan, which showed ususal and unexpected activity all over in every lypmh group except my abdomen.
Does anyone have any thoughts?
I have had several autoimmune test done, Cunningham panel as well as standard tests. Cunningham was off the charts but the rest were not truly indicative of anything significant'. I had an ANA test with a positive result and a titer of 1:80 which, according to the scale, was high, but again dismissed.
Any thoughts? I am so frustrated. I am in so much pain and feel so much physical pressure that I would pop if poked with a pin and yet nothing.
Thanks in advance this board is the best!
How could this be happening ?They can be seen in pictures! I can't hold my arms at my side because they are so so under my armpits. And yet they dont' show and doctors don't think they feel them! I am stunned.
I did have a nuclear test done, and indium scan, which showed ususal and unexpected activity all over in every lypmh group except my abdomen.
Does anyone have any thoughts?
I have had several autoimmune test done, Cunningham panel as well as standard tests. Cunningham was off the charts but the rest were not truly indicative of anything significant'. I had an ANA test with a positive result and a titer of 1:80 which, according to the scale, was high, but again dismissed.
Any thoughts? I am so frustrated. I am in so much pain and feel so much physical pressure that I would pop if poked with a pin and yet nothing.
Thanks in advance this board is the best!
