sunlight is the more powerful tratement i have until now

[youness]

i was very sever by not getting sunlight without knowing it like i need sunlight to have energy it affect all symptoms just two days of sunlight bring me from zombie to human , i have also severe themperature reguelationi get sunlight just by putting my leg out and i get so heated

 

[Wishful]

VitD deficiency? Some people here know about the possible complexities of that.

 

[youness]

VitD deficiency? Some people here know about the possible complexities of that.

not vitamind youcan't benfit this fast from it

 

[wabi-sabi]

Sunlight causes a flare up for me, sadly, as does heat.

 

[Wayne]

not vitamind youcan't benfit this fast from it

I don't think one can dismiss the possibility. The body can make up to 20-50,000 IUs per hour. If a person is low on Vit. D, that amount can kickstart an immune response that has the potential to dramatically alter (improve) any kind of immune dysfunction that may be going on. ME-CFS used to be referred to as CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Which I've always thought more accurately described what most of us experience.

 

[pamojja]

not vitamind youcan't benfit this fast from it

The multifaceted effects of sunlight - beside vitamin D for example also nitric oxide or mitochondrial melatonin, etc. - can be slow and commutative too.

Here are my strongest correlations I posted after remission of PEMs in 2018:

In below table I added max. pain-free walking distance (PFWD; in kms at about 4/hr), Erythrocyte sedimentation rate (ESR), C-reactive Protein (CRP), and Ankle Brachial Index (ABI; normal ≥9). Vitamin D intake (mcg), serum level (25-OH-D), whole-body sun-exposure (hrs/year), and total testosterone (TT) for their very strong correlation. The very high inflammation in '06, 2 years before the PAD diagnosis, was caused by a Myopericarditis.

year:   PFWD   ESR    CRP   ABI    mcg    hrs    25-D    TT    CIMT

2006:    -     74    96      -       -      -      -      -     -
  -      -      -     -      -       -      -      -      -     -
2008:    0.3    5     -     0.7      -      -      -      -     -
2009:    1      8     1.6    -      50      -      -      -     -
2010:    4     15.5   3.4    -     160     60     63     399    -
2011:    6      4     2.4   0.5    240     60     43     220    -
2012:    3      -     5.2   0.8    300     60     62     262    1.3 mm
2013:    3.5   68.5   3.7    -     200    220     84     320    -
2014:    5      9     4.8   0.7    190    220     50     340    1.9 mm
2015:    8     11.5   2.5    -     210    220     78     351    -
2016:    9      8     1.1   0.7    170    240     72     468    1.8 mm
2017:    9     18     1.7    -     220    340    101     631    -
2018:    -     32     5.1   0.9    160    340     93     681    1.0 mm
2019:    -     18.5   2      -     190    340     85     368

-

Seems the high inflammation with the year long chronic bronchitis in '12 progressed CIMT quite some further (a 20% yearly increase), and only around the time I lost my walking-disability it started to regress.

(note: above are yearly averages if more than 1 data-point was available, for example highest hsCRP in '12 was 7.6 mg/l, following ESR in '13 actually 130 mm/hr; highest 25(OH)D 135 ng/ml, lowest total testosterone 187 ng/dl)

Only maximal whole-body sun-exposure after 2 years ceased PEMs for me. Along with an accidentally overshooting vitamin D serum level of 135 ng/ml.

Additional confounders were:

• At the end of 2017 I got my only root-canal treated tooth extracted. (Instead of the precautionary prescribed antibiotic I only took a DSMO mouthwash, and already on the second day no pain from the extraction.)
• At the same time found a GP who gave me inexpensive Magnesium-sulfate IVs almost monthly. After the 6th the pain-full muscle cramps ceased completely. However, retesting whole blood after the 10th IV showed whole blood Mg only raised about 3 mg/dl, still 2 short of normal between 34-36 mg/l. (All the while continuing my high oral intake.)
• Used LDN more consistently above 2 mg/d.

 

[Viala]

You could test it to check which part of the sunlight affects you. Is it eyes exposure, since bright light improves serotonin and dopamine levels, but that usually takes a while to work, is it skin exposure so vitamin D, this can work within 1-2 days, is it infrared light exposure, this is quicker. Sunlight usually wipes me out so I can't use it. I did these tests to see which part is the most problematic. Eyes opened, eyes closed, skin covered, uncovered, depending on UV index.

 

[Viala]

I don't think one can dismiss the possibility. The body can make up to 20-50,000 IUs per hour. If a person is low on Vit. D, that amount can kickstart an immune response that has the potential to dramatically alter (improve) any kind of immune dysfunction that may be going on. ME-CFS used to be referred to as CFIDS (Chronic Fatigue Immune Dysfunction Syndrome). Which I've always thought more accurately described what most of us experience.

I agree, at some point I supplemented high doses of vitamin D, 10-20k daily, and seen clear results within a few days.

 

[wabi-sabi]

Vitamin D never did anything for me either. But sunlight can make your mitos work better, so maybe that's it.