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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I agree with your thoughts on this, but the phrase "half-sick" is a bit offensive.
I function at about 25-30% of normal and I'm sometimes housebound, especially at this time of year. Am I "half-sick"?
I DO hope the severely ill will receive the focus that is needed, for their sake and mine. I am probably on my way to joining that group. Despite somewhat effective treatment for several of my symptoms, the ataxia is getting worse. The last time I fell, I broke my leg and dislocated my shoulder. At age 67, if/when I fall again I'll probably be in a wheelchair the rest of my life, at best. That's IF I survive the surgery, etc.
Thanks for all you do. Wish I had an advocate like you.
I wonder if the most severely ill are living in houses with hidden toxic mold. I was quickly on my way to becoming severe after crashing a few days after moving into a new house. Moving out of that house I quickly regained most of my functionality.
I did not move before I fell ill and still live in the same house.
Any idea if there is mold inside your walls?