taniaaust1
Senior Member
- Messages
- 13,054
- Location
- Sth Australia
I just had another seizure so right now feeling unsettled over it. Pity its a Sunday as I would be otherwise ringing my GP, its pointless going down to the local hospital as they cant do EEGs here. I have no one who can take me to a city hospital for a brain scan (my boyfriend is with his wife on weekends so he isnt able to help and he's the only help I get).
I missed my last brain scan appointment after the wait for 5mths for the appointment to come up as I forgot about it
.
(my previous brainscans have common ME abnormality showing on them but didnt show up epilespy... my specialist thou thinks I may of developed epilepsy but that dont appearly always show on a scan unless one is having a seizure at the time.. and hence i was meant to have a brain scan after my last seizure as my specialist is hoping to pick up the epilepsy? at some point..
***feeling like kicking myself for forgetting after having to wait for it for so long***).
my head is feeling weird a little right now (after effect of what happened) but Im okay.
Can anyone tell me what kind of seizures these are likely to be? (my specialist isnt a neurologist).
Todays one was caused by getting up (so orthostatic seizure???), years ago ..beginning of ME I used to suffer constant low BP but the collapses on getting up due to that, were just black outs with no shaking at all present. The seizures I get now can be caused also by extreme stress.
Todays started off like it was just going to be a normal POTS black out or collapse. I went blind (blackness) and collapsed straight down to the floor. I partly lost awareness but did still maintain some.. I was aware of my hands flapping about but that is it. This lasted for about 10 seconds with my hands quite violently being shaken (i dont know what the rest of my body was doing but I suppose my arms must of been moving about to make my hands do that).
I missed my last brain scan appointment after the wait for 5mths for the appointment to come up as I forgot about it
(my previous brainscans have common ME abnormality showing on them but didnt show up epilespy... my specialist thou thinks I may of developed epilepsy but that dont appearly always show on a scan unless one is having a seizure at the time.. and hence i was meant to have a brain scan after my last seizure as my specialist is hoping to pick up the epilepsy? at some point..
***feeling like kicking myself for forgetting after having to wait for it for so long***).
my head is feeling weird a little right now (after effect of what happened) but Im okay.
Can anyone tell me what kind of seizures these are likely to be? (my specialist isnt a neurologist).
Todays one was caused by getting up (so orthostatic seizure???), years ago ..beginning of ME I used to suffer constant low BP but the collapses on getting up due to that, were just black outs with no shaking at all present. The seizures I get now can be caused also by extreme stress.
Todays started off like it was just going to be a normal POTS black out or collapse. I went blind (blackness) and collapsed straight down to the floor. I partly lost awareness but did still maintain some.. I was aware of my hands flapping about but that is it. This lasted for about 10 seconds with my hands quite violently being shaken (i dont know what the rest of my body was doing but I suppose my arms must of been moving about to make my hands do that).