Ren
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- Messages
- 385
Dear Secretary Sebelius - On 13 February 2014 you tweeted, "Everyone deserves the human dignity of being protected from infectious disease." In what ways, Secretary Sebelius, will HHS begin/maintain chronic gastrointestinal enterovirus infection research/testing/treatment, in order to preserve such individuals' human dignity? In what ways will HHS work to create significantly accurate testing methods for Lyme (borrelia / neuroborreliosis)? Etc.
If Sebelius had a narrow focus regarding which types of infection/microbe control she equates with human dignitity, then she shouldn't have made a blanket statement using the generic term "infectious disease" - in my opinion.
If severity of ME - as claimed by some researchers - is associated with intensity/severity of initial infection, then protection from infectious disease includes recognition and immediate treatment of infection before it progresses to a worsened state. Likewise, those harmed to whatever degree by gastrointestinal infections deserve treatment for this infectious disease state.
I think we need to keep an eye out for what's being said and done throughout HHS, etc. and piggyback however we can, if it can benefit even a minority of ME/CFS patients in varying degrees.
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Edit: I just wanted to add the link below bc I was thinking that someone (Vanelzakker) had also proposed localized vagal nerve infection ("what happens in vagal, stays in vagal!" - sorry that was really bad). But I am NOT a science person, so please forgive/correct errors or out-dated info. http://simmaronresearch.com/2013/09...markers-few-viruses-chronic-fatigue-syndrome/
If Sebelius had a narrow focus regarding which types of infection/microbe control she equates with human dignitity, then she shouldn't have made a blanket statement using the generic term "infectious disease" - in my opinion.
If severity of ME - as claimed by some researchers - is associated with intensity/severity of initial infection, then protection from infectious disease includes recognition and immediate treatment of infection before it progresses to a worsened state. Likewise, those harmed to whatever degree by gastrointestinal infections deserve treatment for this infectious disease state.
I think we need to keep an eye out for what's being said and done throughout HHS, etc. and piggyback however we can, if it can benefit even a minority of ME/CFS patients in varying degrees.
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Edit: I just wanted to add the link below bc I was thinking that someone (Vanelzakker) had also proposed localized vagal nerve infection ("what happens in vagal, stays in vagal!" - sorry that was really bad). But I am NOT a science person, so please forgive/correct errors or out-dated info. http://simmaronresearch.com/2013/09...markers-few-viruses-chronic-fatigue-syndrome/
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