Recommendations for neuropsychologist for evaluation for SSDI

[cherlyn]

After much reading, it is clear to me that we need to have a neuropsychological evaluation as a part of records when applying for SSDI. It is also clear that we need to locate a neuropsychologist who is knowledgeable about CFS and the impact it has on the patient. I would appreciate hearing any recommendations based on experience of the many on these forums. I would prefer the midwest but am open to another location if necessary.

Thank you.

 

[Nielk]

After much reading, it is clear to me that we need to have a neuropsychological evaluation as a part of records when applying for SSDI. It is also clear that we need to locate a neuropsychologist who is knowledgeable about CFS and the impact it has on the patient. I would appreciate hearing any recommendations based on experience of the many on these forums. I would prefer the midwest but am open to another location if necessary.

Thank you.

I'm not sure cherlyn why you think this is necessary. If you have a medical doctor who is knowledgeable about ME/CFS, they should be able to know how to diagnose you and which tests to take. Are you being seen by a CFS expert?

 

[taniaaust1]

I want to know the answer to the above question too as ive read that certain kinds of neuropsychological evaluation can show up issues in us but it needs to be the right kind of tests as our issues are different to most other illnesses. Im wanting to know this as Im currently being assessed by DisabilitySA (for home help etc etc) and they mentioned possibly getting me neuropsychological tested and I want them doing the right one for us.

I got knocked back 3 times for SSDI as THREE specialists supporting that I needed it but that wasnt enough for them and they wanted some kind of proof I had issues.
(third appeal I did manage to get it but it had gone right to the top by that time and fortunately that person did know about ME).