- Messages
- 88
- Location
- Oxfordshire, UK
Do you ever think things can't get any worse? I have proved that,in my case anyway, they can.
Having been battling liver discomfort, pancreas pain and gallbladder pain - last 2 have improved mostly, liver varies- I have now developed the most horrific rash all over my body. It started as random body-wide itches and a v itchy spot beneath my left foot. The foot has been covered in huge, foul-smelling (when they start to burst) blisters for over a week and I can barely walk.
The same rash is appearing on hands and fingers And other foot and my body is covered an intensely itchy, red rash that feels raised. I have worked out that I ah e it in my mouth too and suspect anus-it is burning at times. I have tried all sorts of things to no avail-tea tree oil, coconut oil, apple cider vinegar, lavender oil.
I visited my GP surgery 3 times last week- which I usually try to avoid doing because it's them that got me on the path to ill health in the first place. They each said different things and prescribed all sorts of lotions p, including a steroid cream. I pointed out every time that I am very sensitive to all medications including topical ones but got the usual NHS responses- along the lines of it will be fine etc .
The 3rd doc took one look at me and picked the phone up to call the on call dermatologist at one of Oxford's hospitals ; the up shot was I had a consultation today and have been prescribed even more stuff and been told that I need to apply 15 finger tips worth of strong steroid cream all over my body twice a day for 2 weeks. The leaflet enclosed says 1 finger tip worth for only a week and not to use on large areas.
Also prescribed anti histamines to make me sleep more so that I don't scratch in my sleep and another one for the morning to keep the itch at bay. I honestly do not think my liver will deal with the onslaught but neither do I want to risk it becoming even worse ie life threatening. They said that it is a systemic inflamed ezcema caused by the itching under my foot which is pompholyx. I have never had ezcema in my life.
I think it may be candida related - I noticed vaginal itching when got too alkaline taking mag oxide- as a stool test in November showed +2 for candida. But docs just say no, can't be related. Have begun in earnest on candida protocol following resistant starch and enzymes with probiotics- so far no obvious die-off. Have to be careful with anti- fungals because of liver but am doing a 4 days rotate between olive Leaf and uva ursi so far- will try another one after the 4 days of each is up.
I spoke to my ecological doc over the phone last week and he thinks I stirred something up when trying Folate and b 12.......and that it would run its course and go away. I would like to believe that but at the moment I have to put my hand on my heart and say that I know it is getting worse- and that I am very frightened. He didn't think I should use steroid cream but what choice do I have?!
It makes me realise how functioning I was in spite of the other issues- I am barely surviving now and feel in decline.
I am tempted to try a liver flush; already do coffee enemas- as I think this is probably a final shout from my liver saying it is clogged up. Had an ultrasound the week before last and that was normal and was meant to be having a CT scan-privately as GP says nothing wrong- but can't book in for it in this state.
I can't believe that 4 years ago I was so healthy and full of life - living life to the full and more and able to run 40 miles a week easily.
I doubt anybody has a similar story as we are all so different but am just wondering if anybody has experienced a severe decline and been able to heal out of it?
Good luck and good wishes to everybody out there- what fights we have.
Mels
Having been battling liver discomfort, pancreas pain and gallbladder pain - last 2 have improved mostly, liver varies- I have now developed the most horrific rash all over my body. It started as random body-wide itches and a v itchy spot beneath my left foot. The foot has been covered in huge, foul-smelling (when they start to burst) blisters for over a week and I can barely walk.
The same rash is appearing on hands and fingers And other foot and my body is covered an intensely itchy, red rash that feels raised. I have worked out that I ah e it in my mouth too and suspect anus-it is burning at times. I have tried all sorts of things to no avail-tea tree oil, coconut oil, apple cider vinegar, lavender oil.
I visited my GP surgery 3 times last week- which I usually try to avoid doing because it's them that got me on the path to ill health in the first place. They each said different things and prescribed all sorts of lotions p, including a steroid cream. I pointed out every time that I am very sensitive to all medications including topical ones but got the usual NHS responses- along the lines of it will be fine etc .
The 3rd doc took one look at me and picked the phone up to call the on call dermatologist at one of Oxford's hospitals ; the up shot was I had a consultation today and have been prescribed even more stuff and been told that I need to apply 15 finger tips worth of strong steroid cream all over my body twice a day for 2 weeks. The leaflet enclosed says 1 finger tip worth for only a week and not to use on large areas.
Also prescribed anti histamines to make me sleep more so that I don't scratch in my sleep and another one for the morning to keep the itch at bay. I honestly do not think my liver will deal with the onslaught but neither do I want to risk it becoming even worse ie life threatening. They said that it is a systemic inflamed ezcema caused by the itching under my foot which is pompholyx. I have never had ezcema in my life.
I think it may be candida related - I noticed vaginal itching when got too alkaline taking mag oxide- as a stool test in November showed +2 for candida. But docs just say no, can't be related. Have begun in earnest on candida protocol following resistant starch and enzymes with probiotics- so far no obvious die-off. Have to be careful with anti- fungals because of liver but am doing a 4 days rotate between olive Leaf and uva ursi so far- will try another one after the 4 days of each is up.
I spoke to my ecological doc over the phone last week and he thinks I stirred something up when trying Folate and b 12.......and that it would run its course and go away. I would like to believe that but at the moment I have to put my hand on my heart and say that I know it is getting worse- and that I am very frightened. He didn't think I should use steroid cream but what choice do I have?!
It makes me realise how functioning I was in spite of the other issues- I am barely surviving now and feel in decline.
I am tempted to try a liver flush; already do coffee enemas- as I think this is probably a final shout from my liver saying it is clogged up. Had an ultrasound the week before last and that was normal and was meant to be having a CT scan-privately as GP says nothing wrong- but can't book in for it in this state.
I can't believe that 4 years ago I was so healthy and full of life - living life to the full and more and able to run 40 miles a week easily.
I doubt anybody has a similar story as we are all so different but am just wondering if anybody has experienced a severe decline and been able to heal out of it?
Good luck and good wishes to everybody out there- what fights we have.
Mels
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