Hello Helen,
Sorry to hear that your application wasn't successful and also the fact that you have a lot of evidence, just not right at all.
I am now not sure that I do have enough evidence, sounds like you have alot more than I do. But thanks for the advice about the citizens advice I will look in it.
I hope your appeal is a successful one.
Jessie.
I don't think it's about amount of evidence. Sadly, it seems to be more about the integrity of the person doing the medical assessment and the people making the decision.
I got PIP with a CAB worker filling in my form for me who knew how to put the answers so they were both true and expressed in a way to get the points.
I had a doctor's report from my GP who confirmed the diagnosis, stated briefly my limitations and care needs and said I would need to have the medical at home. That was the only evidence I was able to give because I don't have a consultant or any other medical input.
And the nurse from ATOS who did the PIP medical must have written a report based on what I told her, not made up stuff as I've gathered some do, and as I've experienced in the past. That is a matter of luck, sadly.
So what you need is a form filled in to make your limitations and needs clear, only saying you can do something if you can do it without pain, repeatedly and in a timely manner. The MEA has a guide, if you can't get help.
They are more interested in how your illness limits your ability to do things, rather than the name of your illness. In that sense, a report from a carer saying what they need to do for you is probably more useful than a high status doctor confirming a diagnosis.