The Guardian online (don't know about on paper) have published an excellent article about the impact of ME on a carer's life:
http://www.theguardian.com/commentisfree/2013/aug/08/me-misunderstood-health-welfare
The article allows comments, which means that it's an opportunity to spread the word about the UK Rituximab trial and encourage people to donate.
Many UK PWME who aren't part of the community and don't know what's going on will read this and it's a chance to reach out to them and engage them in the fundraising campaign.
So, please post an upbeat, can-do, message about the trial, with a link to the trial site:
http://www.ukrituximabtrial.org
Ignore trolls - people who read your message probably won't read the troll message and will just see you ranting and assume it's all your fault (that's the internet for you). Please be positive and be a good ambassador for the community in whatever you post, because that's what will attract more people and more donations!
We should be doing this whenever the UK media publish a story on ME that allow comments. The faster we are off the mark, the more visible our comments are (they're usually listed in order of posting or by how many 'likes' they've accumulated), so please do post about these media stories quickly if you see them.
http://www.theguardian.com/commentisfree/2013/aug/08/me-misunderstood-health-welfare
The article allows comments, which means that it's an opportunity to spread the word about the UK Rituximab trial and encourage people to donate.
Many UK PWME who aren't part of the community and don't know what's going on will read this and it's a chance to reach out to them and engage them in the fundraising campaign.
So, please post an upbeat, can-do, message about the trial, with a link to the trial site:
http://www.ukrituximabtrial.org
Ignore trolls - people who read your message probably won't read the troll message and will just see you ranting and assume it's all your fault (that's the internet for you). Please be positive and be a good ambassador for the community in whatever you post, because that's what will attract more people and more donations!
We should be doing this whenever the UK media publish a story on ME that allow comments. The faster we are off the mark, the more visible our comments are (they're usually listed in order of posting or by how many 'likes' they've accumulated), so please do post about these media stories quickly if you see them.
