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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Opinions on Florinef?

T

taniaaust1

Senior Member
Messages
13,054
Location
Sth Australia
It's definitely worth a trial if you have POTS.

Just a few things though.. always start it out in very low dosage.. in my case the doctor had me trialling a quarter of a pill of it for a bit before he incresed it to trialling half a pill. He checked my potassium level after each increase as this drug can lower a person levels. For it to work you need to have enough salt in your diet and be drinking enough water.

You also may need to take it with other measures for POTS put into place too eg many may need compression stockings. With POTS treatment is often doing several things
 
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