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Jifmomto8+1
Hello all. I am a newbie with a very sick hubby. He began having trouble 11 yrs or so ago with seemingly random itching only on the tops of his feet or he would get one little hive next to his belly button, just periodically, more especially when he traveled to Mexico on frequent business trips.
After we moved to Kansas almost 7 years ago, things began to escalate. More frequent hives and started wheezing. Had allergy testing done and only a dog allergy showed up. Well I had already determined that he reacted strongly to vinegar and garlic. Doc says well you can't be allergic to vinegar. So helpful.
He now reacts to most any strong smell, natural or chemical. He reacts to dust, dogs, grass, nuts, citrus, sulfates, shellfish, rosemary, basil, cinnamon, gluten, acetates, iodine, a whole host of medicines etc. In addition diagnosed with IBS. Pretty sure he has MCS/MCAS.
March 2014 he hit his head after apparently passing out in the bathroom. He got a concussion. MRI and EKG, blood work all normal. Since then he has steadily lost cognitive function, has severe ongoing headaches and begun having what appears to be complex partial seizures, EEG normal. He lost his job last August. Thank the Lord for long term disability insurance, but what a pain to get it approved! We went 5 months with 0 income, and we have 8 kids!
Next month he has an appointment with a different allergist and a follow-up with the neurologist about the seizure type events. My question is what tests should we ask for? We need to prove disability to SSA or lose our private insurance in one year.
We are testing our home for stachybotris, as there is visible mold in our leaky basement. But VCS screening test showed issues only with nutritional status not biotoxin. Some of the kids have developed food intolerances, panic attacks, stuttering, and more since moving here as well.
Thanks for your time and help. I've learned a lot reading through the forums already.
Jen
Hello all. I am a newbie with a very sick hubby. He began having trouble 11 yrs or so ago with seemingly random itching only on the tops of his feet or he would get one little hive next to his belly button, just periodically, more especially when he traveled to Mexico on frequent business trips.
After we moved to Kansas almost 7 years ago, things began to escalate. More frequent hives and started wheezing. Had allergy testing done and only a dog allergy showed up. Well I had already determined that he reacted strongly to vinegar and garlic. Doc says well you can't be allergic to vinegar. So helpful.
He now reacts to most any strong smell, natural or chemical. He reacts to dust, dogs, grass, nuts, citrus, sulfates, shellfish, rosemary, basil, cinnamon, gluten, acetates, iodine, a whole host of medicines etc. In addition diagnosed with IBS. Pretty sure he has MCS/MCAS.
March 2014 he hit his head after apparently passing out in the bathroom. He got a concussion. MRI and EKG, blood work all normal. Since then he has steadily lost cognitive function, has severe ongoing headaches and begun having what appears to be complex partial seizures, EEG normal. He lost his job last August. Thank the Lord for long term disability insurance, but what a pain to get it approved! We went 5 months with 0 income, and we have 8 kids!
Next month he has an appointment with a different allergist and a follow-up with the neurologist about the seizure type events. My question is what tests should we ask for? We need to prove disability to SSA or lose our private insurance in one year.
We are testing our home for stachybotris, as there is visible mold in our leaky basement. But VCS screening test showed issues only with nutritional status not biotoxin. Some of the kids have developed food intolerances, panic attacks, stuttering, and more since moving here as well.
Thanks for your time and help. I've learned a lot reading through the forums already.
Jen
