Here in Israel they are starting a new trial of using neurofeedback to treat Fibromyalgia. They are happy to include patients with CFS co morbid to the FMS.
It means I get neurofeedback treatment free. Including even transport costs!
Also there will be a free sleep test done at home before and after the research. That is a big advantage because those normally cost money as opposed to sleep clinics.
It is to be done in the main Tel Aviv hospital, not some charlatan unsupervised clinic. They hope to publish the end results in a scientific paper in a few years time.
My CFS/ME friend here in Israel tells me that I am missing a great opportunity for improvement if I don't take part in this trial.
But I don't know if it will help. I would have to travel 2 times a week to do the neurofeedback training and that is hard for me. I am frightened it will make me worse or not help.
The idea behind it is to use the neurofeedback to improve the patients sleep. The doctor in charge is theorizing that if sleep is improved in patients, then the symptoms of FMS will improve.
Unfortunatly they will only check the sleep improvement and pain improvement as this is officially for "fibromyalgia" , which I have secondary to CFS/ME. (In Israel fibromyalgia is taken more seriously than real ME, which is totally unrecognized.)
I already did a search for neurofeedback on this forum. I only found
this old thread.
http://forums.phoenixrising.me/index.php?threads/neurofeedback.678/
What is neurofeedback?
The more I read about it the more confused I get.
I would be grateful for any opinions/advice on what to do.
It means I get neurofeedback treatment free. Including even transport costs!
Also there will be a free sleep test done at home before and after the research. That is a big advantage because those normally cost money as opposed to sleep clinics.
It is to be done in the main Tel Aviv hospital, not some charlatan unsupervised clinic. They hope to publish the end results in a scientific paper in a few years time.
My CFS/ME friend here in Israel tells me that I am missing a great opportunity for improvement if I don't take part in this trial.
But I don't know if it will help. I would have to travel 2 times a week to do the neurofeedback training and that is hard for me. I am frightened it will make me worse or not help.
The idea behind it is to use the neurofeedback to improve the patients sleep. The doctor in charge is theorizing that if sleep is improved in patients, then the symptoms of FMS will improve.
Unfortunatly they will only check the sleep improvement and pain improvement as this is officially for "fibromyalgia" , which I have secondary to CFS/ME. (In Israel fibromyalgia is taken more seriously than real ME, which is totally unrecognized.)
I already did a search for neurofeedback on this forum. I only found
this old thread.
http://forums.phoenixrising.me/index.php?threads/neurofeedback.678/
What is neurofeedback?
The more I read about it the more confused I get.
I would be grateful for any opinions/advice on what to do.
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