Research 1st
Severe ME, POTS & MCAS.
- Messages
- 768
Hello everyone, I don't know if I'm late in the day reporting this but Nagalase can now be detected in urine as well as blood according to the website below. I believe the first tests available to the public were blood, hence my post.
The test can be sourced in the UK from a re-seller of other certified Labs in central London.
http://bloodtestslondon.com/shop/article_NAG/Nagalase-urine-test.html?pse=apq
Cost is £152.45 ($242) which includes the fee for a doctors referral letter so you can buy it online without leaving the home.
In my view this is expensive, but if it's from a reputable lab in the UK then it's worth it rather than a lesser lab that is not considered validated. Often physicians can contest the relevance of abnormal test results who haven't heard of labs outside the UK or won't accept the results.
I looked over in Holland at ELN (European Laboratory of Nutrients) and saw in contrast they are apparently only offering a blood test (frozen plasma), as are REDLABS in Belgium. I thought it may be useful to let people know of this alternative urine test due to the additional cost in paying, arranging blood to be frozen before mailing it, and experiencing a blood draw which is rarely pleasant or easy to arrange if one is housebound and cannot get to a phlebotomist..
Nagalase is reportedly elevated in CFS, Autism and HIV. Probably unsurprising as there is a retroviral link. I don't know if Nagalase is elevated in autoimmune diseases and that would be interesting to know.
If this is old news, please delete the post. Please note as I haven't had the test I cannot vouch for the accuracy of the test or its source.
Thank you.
The test can be sourced in the UK from a re-seller of other certified Labs in central London.
http://bloodtestslondon.com/shop/article_NAG/Nagalase-urine-test.html?pse=apq
Cost is £152.45 ($242) which includes the fee for a doctors referral letter so you can buy it online without leaving the home.
In my view this is expensive, but if it's from a reputable lab in the UK then it's worth it rather than a lesser lab that is not considered validated. Often physicians can contest the relevance of abnormal test results who haven't heard of labs outside the UK or won't accept the results.
I looked over in Holland at ELN (European Laboratory of Nutrients) and saw in contrast they are apparently only offering a blood test (frozen plasma), as are REDLABS in Belgium. I thought it may be useful to let people know of this alternative urine test due to the additional cost in paying, arranging blood to be frozen before mailing it, and experiencing a blood draw which is rarely pleasant or easy to arrange if one is housebound and cannot get to a phlebotomist..
Nagalase is reportedly elevated in CFS, Autism and HIV. Probably unsurprising as there is a retroviral link. I don't know if Nagalase is elevated in autoimmune diseases and that would be interesting to know.
If this is old news, please delete the post. Please note as I haven't had the test I cannot vouch for the accuracy of the test or its source.
Thank you.
