Hi, i have been experiencing Strong muscle jerks for about the past 6 months, at one point it went away and now is back. It has taken me a long time to work out what it is, but after seeing some videos on you tube of other M.E sufferers i can see that it is the same as what they call myoclonus. I have it especially after exertion -although not until i lay or sit down and it included at first just the legs, then progressed to the legs and arms, now i get the jerks in my legs, arms, neck head and torso (spine?) often involving multiple muscle groups. It goes on for a while and then as i rest up it stops.
Does anyone know what causes this, is it neurological? I also have an over active startle reflex and just read that this can be linked to myoclonus. I also wonder if it is a sign of progression of the illness and if anyone who has documented lesions of the brain suffers from this -would it show up on a brain scan and would a neurologist in the UK take this seriously (especially if i didnt mention the M.E dx)
Thanks, Justy.
Does anyone know what causes this, is it neurological? I also have an over active startle reflex and just read that this can be linked to myoclonus. I also wonder if it is a sign of progression of the illness and if anyone who has documented lesions of the brain suffers from this -would it show up on a brain scan and would a neurologist in the UK take this seriously (especially if i didnt mention the M.E dx)
Thanks, Justy.