LaurelB
Senior Member
- Messages
- 139
Hi all,
In this video from 2017, Ron Davis states that ME/CFS patients should avoid mTOR inhibitors, but doesn't go into detail as to why (beyond stating he found two patients with a rare mutation in mTOR). He speculates that it could make ME/CFS much worse, and could even possibly trigger ME/CFS. Does anyone have any further information on this? That is, what the mutation actually is, and what could go wrong in ME/CFS if taking an mTOR inhibitor?
I am asking in light of the recent Simmaron Research findings and their current trial on rapamycin (which is a known mTOR inhibitor). My doctor is interesting in trying rapamycin with me, and I would like to know more about why Dr. Davis advices against it before I try it.
Thanks for any information.
OMF video (cued up to the mTor question):
In this video from 2017, Ron Davis states that ME/CFS patients should avoid mTOR inhibitors, but doesn't go into detail as to why (beyond stating he found two patients with a rare mutation in mTOR). He speculates that it could make ME/CFS much worse, and could even possibly trigger ME/CFS. Does anyone have any further information on this? That is, what the mutation actually is, and what could go wrong in ME/CFS if taking an mTOR inhibitor?
I am asking in light of the recent Simmaron Research findings and their current trial on rapamycin (which is a known mTOR inhibitor). My doctor is interesting in trying rapamycin with me, and I would like to know more about why Dr. Davis advices against it before I try it.
Thanks for any information.
OMF video (cued up to the mTor question):