ME/CFS Doctor List

[slayadragon]

I am putting together a list of doctors and researchers who know enough about this disease that they might be helpful in providing information or comments to the media.

FYI, here is the project I'm working on.

http://www.change.org/petitions/upd...and-economic-climate-re-me-and-cfs#signatures

I have the list below as a starter. Are there are other people who should be included?

Thanks much for your help!

Best, Lisa

*

Dharam Ablashi
David Bell
Gordon Broderick
Paul Cheney
John Chia
Dane Cook
Kenny de Meirleir
Derek Enlander
Kenneth Friedman
Byron Hyde
Leonard Jason
Jonathan Kerr
Anthony Komaroff
Charles Lapp
Susan Levine
Shih Ching Lo
Jose Montoya
Daniel Peterson
Christopher Snell
Michael Snyderman
Staci Stevens
Robert Suhadolnik

 

[dsdmom]

Lucinda Bateman
Nancy Klimas

 

[KC22]

Martin Lerner

 

[heapsreal]

Dr lewis and Dr Deed in Australia.

 

[ukxmrv]

Prof Murdoch in New Zealand

Abhijit Chaudhuri

and Professor Hooper

in the UK

 

[SaveMe]

Benjamin Natelson

but how could u forget the Queen of CFS....Klimas?

 

[slayadragon]

Or forget Sarah Myhill either. Obviously that first list of mine was not very complete.

More suggestions please? Surely there must be others.

 

[caledonia]

Vincent Lombardi
Judy Mikovits
Ila Singh

 

[leaves]

Dont think Sing or Mikovits are practicing md's??

 

[Hope123]

Dont think Sing or Mikovits are practicing md's??

A number of people on the list aren't MDs but I think the OP is just asking for people who have knowledge of ME/CFS and can provide media with accurate facts and impressions about ME/CFS.

Fred Friedberg - IACFS President and psychologist
Gudrun Lange -- neuropsychologist
Andy Kogelnik -- Infectious disease doc
Joseph Brewer - Infectious disease doc in ?Kansas City
Peter Rowe -- pediatrician at Johns Hopkins
Alison Bested -- in Toronto but I leave this up to people who have seen her
Bruce Campbell -- behavioral psychologist who runs cfidsselfhelp.org (had CFS himself for several years and knows what behavioral psychology can or can't do)
Alan and Kathy Light at University of Utah

 

[SpecialK82]

Dr. Donnica Moore

 

[slayadragon]

These are great! Yes, anybody who knows anything about CFS would be great.

 

[August59]

Dr. Laura Black. She is at Hunter Hopkins Center with Dr. Lapp and she is very good. I'm sure she has has more clinic hours than Dr. Lapp over the last 5 years.

 

[drex13]

How about Rich VanKonyenburg ?

 

[WillowJ]

Harvey Alter
Yves Jammes (France, professor of medicine [pulmonology?], Universit de la Mditerrane)
Michael Maes

and how about Leonard Calabrese? see PMID 8148449, 9599909, 15351380 ... however no current work. maybe someone should phone him and ask some questions before adding him to the list: http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=337

Another like this is Eng Tan. See PMID 11958593, 9041942, 8878441. http://vivo.scripps.edu/display/TanEng
This would be a great scientist to draw back into an interest in ME/CFS: http://www.curearthritis.org/research/in-honor-3-specific-awards

Another person who hasn't researched ME/CFS in a while is G Nicholson. PMID 12887507, 12423773, 10691196

 

[*GG*]

Should we have our Drs permission before posting it here? How about if we don't know exactly what our Drs stance is, but they have helped you a lot?!

GG

 

[WillowJ]

another possibility is Tiziana Pietrangelo (see PMIDs 19822097, 19505395, 18274865) Italy
affiliation info here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1780011/?tool=pubmed

the more countries we have represented, the more countries/continents have someone to call

 

[slayadragon]

These are great...thanks.

 

[RestingInHim]

know anyone in southern california?

 

[insearchof]

Dr Elizabeth Dowsett UK