Anyone checked this out? Any thoughts or apply to any of you? I’m not diagnosed hypothyroid but have low but in range T3 and T4 with normal TSH. https://www.sciencedaily.com/releases/2018/03/180320084337.htm
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That’s not what I’m suggesting. I don’t care about the name.Pinging @pattismith
No, that’s excellent. Very interesting. Never would have thought about body temperature and fevers. And yes, it seems like that final time you get sick with a typical cold or flu or whatever, it just never goes away. Thank you. Excellent post.Yes, definitely. Something is not responding as it should. I think that whatever happened to cause this disease (and many feel like it was a virus of some sort, myself included) knocked a lot of things out of whack in our bodies but which came first the virus or the thyroid issues or something else? Did you get a virus 16 month ago?
The article you reference mentions rT3 and I really found the Wilson Temperature Protocol interesting because it talks about that and about the scientific fact that enzymes only work at 98.6 degrees. Our systems need working enzymes in order to do everything they do to function properly. I think a lot of PWC tend to be low thyroid and low temp. My average temperature seems to run about 96.2.
I have theorized that for some this virus in our system keeps re-activating (per Dr. Montoya’s theory) because we were never able to mount a full defense against it by running a legitimate fever. My fevers tend to be around 98.7 which doctors don’t recognize as a fever but which definitely feels like a fever to me but still not enough to kill a virus really.
Some people here have talked about feeling better after getting a cold or taking Equilibrant and getting a fever around the 3rd week. Is that fever what finally starts to get at that virus hiding in our cells? I think that might be key.
Also I read about a teenager who was diagnosed with Lyme’s disease who finally got better after going to Germany (I think) where they treated her by raising her body temperature (I don’t remember how high but I think it was to 106).
Anyway, I did try the Wilson Temperature Protocol with microdoses of the T3 medication on my own and felt better when my temps went up to 98.6 or above but I don’t have a doctor in our area that will help me with this. (Plus, even the microdoses of the T3 affected my heart.)
There is a doctor in Beloit who said he has used this protocol but prefers to use others instead so I don’t think he would help me and from what I have read on his site, his plan is too similar to what my own doctor was doing and I was having a lot of problems with that.
Anyway, hope you find something that helps. Please keep us posted. (Thanks for bearing with my rambling.)
If there is any truth to this, it would be easy to fix.
I’ve always had low thyroid and felt really well especially after going on trt. Had low testosterone and totally fixed that and got really healthy and happy until 16 months ago when this hit.
Since then it’s been a gradual free fall the other direction.
Theres no reason to all of a sudden get sick with the same t3,T4 and TSH that I’ve always had. Just looking for any possibilities which all of you have obviously done. Oh well. Thanks for the responses.
I have 1 more test on Tuesday doing an EEG. That’s not gonna find anything related to my symptoms.
Friday I see GP and need to get officially diagnosed with CFS. Everything will be ruled out that I can think of.
Anyone checked this out? Any thoughts or apply to any of you? I’m not diagnosed hypothyroid but have low but in range T3 and T4 with normal TSH. https://www.sciencedaily.com/releases/2018/03/180320084337.htm
Thanks Diane.Awww, if only finding the cause of ME/CFS were that simple. Many of us have low thyroid and though thyroid replacement is an important part of our treatment, unfortunately it's not the cure for ME.
Having said that, if you spend any time on popular thyroid forums you'll also find thyroid patients who were misdiagnosed with having ME/CFS when in reality what they had was hypothyroidism (Hashimoto's autoimmune thyroiditis being the most common cause of hypothyroidism). The reason for this being that there are many overlapping symptoms.
My TSH was never all that high (I think 4.5 if I remember) and my Free T3 & 4 were in the normal range but on the low side. I was fortunate enough to have a smart doc who suspected Hashimoto's based on symptom so he tested me for it and my anti-TPO's were in the 900's. He also ordered an ultra sound which confirmed I had 5 thyroid nodules consistent with Hashimoto's. Without Thyroid replacement I'd definitely be in worse shape than I already am.
Have you been checked for Hashimoto's? The TSH is VERY unreliable for many of us.
Best wishes.
Diane