looking for dysautonomia specialist

[por-cel19]

I am looking for specialist in syncope be it pots or something similar traveling isn't a concern just needs to be good

 

[minkeygirl]

You didn't say where you are. You also might want to put pots specialist in the title so people know right off what you're looking for.

 

[por-cel19]

little rock Arkansas

 

[Sing]

I found a specialist by looking online for neurologists within travelling distance. Of these I looked for a sub-specialty in Autonomic Disorders

 

[halcyon]

I am looking for specialist in syncope be it pots or something similar traveling isn't a concern just needs to be good

I think I mentioned this in one of your other threads, but you are within reasonable driving distance to Vanderbilt which as I understand it is on the forefront of dysautonomia research.

 

[Rooney]

I went to Chemali in VA
http://www.cortjohnson.org/blog/201...omans-journey-through-the-medical-profession/

I then had luck by phone with
http://drblitshteyn.com/

I have been unable to travel back to Chemali for follow up. But his great amo. helped with local cardiologists.

 

[por-cel19]

kewl ill check him out halycon I requested an appointment with Vanderbilt haven't heard anything yet so have you been there if so howd you get in it seems like its really hard

 

[halcyon]

I requested an appointment with Vanderbilt haven't heard anything yet so have you been there if so howd you get in it seems like its really hard

Sorry to hear that. I would keep trying. You may need to have a doctor send in a referral for you if you haven't already.

 

[Sushi]

I requested an appointment with Vanderbilt haven't heard anything yet so have you been there if so howd you get in it seems like its really hard

You can get into Vanderbilt by 2 routes: as part of a study (no charge), or with a referral. Used to be that if you went as a private patient you couldn't choose your doc. This was a big downside for many. I don't know if this is still their policy.

 

[Gingergrrl]

I can't remember if this was already mentioned but Stanford also has an Autonomic Disorders Clinic which I will be going to myself in about two weeks. It also requires a doctor's referral and it took me about 5-6 months to get in.