Letter to The Times today 2rd Oct 2024 from Chair and Vice Chair of NICE criticising the NHS for not implementing the 2021 guidelines.

[Countrygirl]

 

[southwestforests]

Sirs, We have received and do in fact fully understand your recommendations. The unfortunate reality is that implementing them and ensuring their timely and universal application would require significant redirection of resources away from flashier, sparklier, scarier, more marketable and advertisable, diseases and disorders, & furthermore it would additionally require widespread sublimation of health provider arrogance and ego. Neither of those actions are feasible or sustainable in the current environment.

Nobody would admit that in public, but that kind of attitude is probably part of it.

 

[BrightCandle]

At some point its got to become clear that the NHS is opening itself up to being successfully sued for failing to implement the NICE guidance. Every death since should not have happened and was avoidable.

 

[Bronc]

The failure of the NHS to adopt the NICE guideline comes as no surprise. It has to be put in the context of the widespread discrimination against disabled people prevalent in the UK. In April the UN Disability Committee issued a damning report which stated disabled people face systemic discrimination in the UK. The new UK government has totally failed to even acknowledge this report.
Discrimination and the ensuing health inequalities against pwME in the NHS has been going on for decades. A lawsuit against the NHS is something which should be considered. As the UN points out disabled people are facing systemic violations of their human rights. May be that is the angle to approach it from.
Secondly, local ICBs in my region don't have any money to implement the new guidelines. A senior commissioner in the West Yorkshire ICB has repeatedly told me that the NHS is on its knees. Then again it finds money for training courses for it's large bureaucracy on coproduction only then not to engage in coproduction with DPOs.
The situation facing pwME is a terrible indictment of the medical and political establishment in the UK.

 

[southwestforests]

The situation facing pwME is a terrible indictment of the medical and political establishment in the UK.

And yet a good number of people here in the US are still proclaiming how wonderful the NHS is and that we should adopt the same system to fix our country's dysfunctional health care system.