Yes, it's painful.
Thanks for the info @GlassHouse . I will ask my GP for the cream and will let you know how it goes.
Ladies. How common is Vulvodynia in MEcfs ?
- Thread starter gregf
- Start date
Thanks for the info @GlassHouse . I will ask my GP for the cream and will let you know how it goes.
Dear Fredam7
Do you happen to know which herbs are used in France? and is it compresses, or drinking tea that is the route? Thank you
@perrier i sent a reply to dm
The herb is in a pill form and I forgot the name as I don't have access . If you're in France , you can ask a pharmacist what it is , it's sold over the counter and is for urinary tract infections , bacterial .
Vulvar vestibulitis, is a chronic condition and is not an infection at all. It is a pain syndrome of the vestibules . The pain is inside the vagina , concentrated at the first few inches . A pelvic pain dr addresses this although a very good gynecologist can catch it and then send you to a pelvic pain dr which is a gynecologist with a subspecialty in pelvic pain .
VV can go undiagnosed for years because ob/gyns are some of the worst dr's around . My observation is it's mostly female dr's who hate themselves and treat their patients terribly because well, all are women .
But there are a few gems out there . I saw 3 gynecologists. The first told me I have VV because I have "discord", over and over she said this . Never referred me to pelvic pain or suggested any treatment option . I went back a year later begging and she said , "discord ". She was extremely rude as well
Second ob/gyn told me I have lichen sclerosis and gave me steroids . This is rare and needs a biopsy and I didn't think it was correct and still don't.
Another year passed and I found a pelvic pain dr . She was good and told me it's now chronic VV and how unfortunate it is that it went untreated .
I could walk around back then although severe back pain . But I would get such horrid shocks vaginally that I would have to atop
In the street and was so embarrassed . It was so bad , like being electrocuted . Any pants Seam, sitting on a chair , walking , tsmpon and ANY cream or cleanser , causes agony .
You can try vanicraam cleanser or try different handmade soaps. They should be without fragrance , oats or surfactants . Do not use dr bronners , way too harsh even diluted .
Sometimes using ice can help . It's strange , I really wonder how all of this is connected but I think it is . Wish the original poster would share why their dr thinks it's connected .
The herb is in a pill form and I forgot the name as I don't have access . If you're in France , you can ask a pharmacist what it is , it's sold over the counter and is for urinary tract infections , bacterial .
Vulvar vestibulitis, is a chronic condition and is not an infection at all. It is a pain syndrome of the vestibules . The pain is inside the vagina , concentrated at the first few inches . A pelvic pain dr addresses this although a very good gynecologist can catch it and then send you to a pelvic pain dr which is a gynecologist with a subspecialty in pelvic pain .
VV can go undiagnosed for years because ob/gyns are some of the worst dr's around . My observation is it's mostly female dr's who hate themselves and treat their patients terribly because well, all are women .
But there are a few gems out there . I saw 3 gynecologists. The first told me I have VV because I have "discord", over and over she said this . Never referred me to pelvic pain or suggested any treatment option . I went back a year later begging and she said , "discord ". She was extremely rude as well
Second ob/gyn told me I have lichen sclerosis and gave me steroids . This is rare and needs a biopsy and I didn't think it was correct and still don't.
Another year passed and I found a pelvic pain dr . She was good and told me it's now chronic VV and how unfortunate it is that it went untreated .
I could walk around back then although severe back pain . But I would get such horrid shocks vaginally that I would have to atop
In the street and was so embarrassed . It was so bad , like being electrocuted . Any pants Seam, sitting on a chair , walking , tsmpon and ANY cream or cleanser , causes agony .
You can try vanicraam cleanser or try different handmade soaps. They should be without fragrance , oats or surfactants . Do not use dr bronners , way too harsh even diluted .
Sometimes using ice can help . It's strange , I really wonder how all of this is connected but I think it is . Wish the original poster would share why their dr thinks it's connected .
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I don't have vulvodynia, but I have urethral burning and it can extend to clitoris. It has been put down to pudendal nerve neuropathy. Unfortunately I can't treat it locally, as the burning is inside the urethra 
I think it's more common than what it's thought. Also, the vulvodynia diagnosis to me is just another diagnosis like fibromyalgia or cfs, it doesn't mean anything... sorry, but that's what I believe. It's just a name given to a set of symptoms (it just means your vulva hurts). I think if the condition is isolated it makes sense to treat the symptoms without further investigating the cause, if too complex. But in our case, with a whole lot of other symptoms, even systemic, then the cause should be investigated while treating the symptoms. Otherwise it will always be chronic. Unfortunately, we know that's not the case with a lot of doctors.
I think it's more common than what it's thought. Also, the vulvodynia diagnosis to me is just another diagnosis like fibromyalgia or cfs, it doesn't mean anything... sorry, but that's what I believe. It's just a name given to a set of symptoms (it just means your vulva hurts
). I think if the condition is isolated it makes sense to treat the symptoms without further investigating the cause, if too complex. But in our case, with a whole lot of other symptoms, even systemic, then the cause should be investigated while treating the symptoms. Otherwise it will always be chronic. Unfortunately, we know that's not the case with a lot of doctors.