funkyqueen
Senior Member
- Messages
- 123
- Location
- South of France
It's been proven that we have concerns (big problems) with orthostatic intolerance. The low blood volume, poor cardiovascular function and CNS are in causes ...
I wanted to share with you how receiving infusions of NaCl 0.9% help me by adding me blood volume ... And improves my O.I. (Orthostatic Intolerance)
The first infusion, it was to give me some magnesium by veins.
I noticed that the 9 days that followed this first infusion, my very severe orthostatic intolerance (while bedridden 23h-24h / 24h) had improved! I immediately understood that I was helped me, not by magnesium, but by adding a liter of liquid in my venous circuit.
It was seven months ago.
Since I have received a lot of NaCl 0.9% infusions (lightly salted sterile water). This is not so much salt that helps (although, yes, a little anyway), but especially the fact of adding blood volume by VEIN, that keep liquids in the body much more than drinking water ... which will immediatly end on the toilet, you see what I mean ;-)
Since I control the dose, infusion time, how much I need, etc.
I can only really advise you, that it will add you blood volume, helping your heart, reduces tachycardia, better irrigate your brain (cognitive improvement, not very much for me, as I am severe, but improvement nonetheless) ... it may even prevent Transcient Ischemic Accident, like some severe/very severe ME sufferers like me can have
...
Taking some desmopressin helps too, helping to conserve liquids more longer in body ( if test said you need it - if you have very poor /undectable ADH) - but be carefull, Desmopressin contains vasoconstrictors, which can be very dangerous for us)
I recommend infusion of 1 liter per week, done in 3 / 4h for moderate achieved and 2 to 5 infusions weekly for severe, very severe.
Thoughts <3
I wanted to share with you how receiving infusions of NaCl 0.9% help me by adding me blood volume ... And improves my O.I. (Orthostatic Intolerance)
The first infusion, it was to give me some magnesium by veins.
I noticed that the 9 days that followed this first infusion, my very severe orthostatic intolerance (while bedridden 23h-24h / 24h) had improved! I immediately understood that I was helped me, not by magnesium, but by adding a liter of liquid in my venous circuit.
It was seven months ago.
Since I have received a lot of NaCl 0.9% infusions (lightly salted sterile water). This is not so much salt that helps (although, yes, a little anyway), but especially the fact of adding blood volume by VEIN, that keep liquids in the body much more than drinking water ... which will immediatly end on the toilet, you see what I mean ;-)
Since I control the dose, infusion time, how much I need, etc.
I can only really advise you, that it will add you blood volume, helping your heart, reduces tachycardia, better irrigate your brain (cognitive improvement, not very much for me, as I am severe, but improvement nonetheless) ... it may even prevent Transcient Ischemic Accident, like some severe/very severe ME sufferers like me can have
...
Taking some desmopressin helps too, helping to conserve liquids more longer in body ( if test said you need it - if you have very poor /undectable ADH) - but be carefull, Desmopressin contains vasoconstrictors, which can be very dangerous for us)
I recommend infusion of 1 liter per week, done in 3 / 4h for moderate achieved and 2 to 5 infusions weekly for severe, very severe.
Thoughts <3
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