IV saline 2 years on

[BlahBlahBlah]

People have been asking how I'm getting on with IV Saline for severe Me/POTS so I've blogged an update about it http://blogfullofhope.blogspot.co.uk/2017/04/iv-saline-2-years-on.html


#pots #me #cfs #mecfs #ivesaline

 

[perrier]

Please indicate how much saline you take
Is it daily 1.5 L

Does taking 1 L work too

How about 500ml?

How many times a week do you do this?

Is there a worry about diluting hemoglobin?

Thanks

 

[bspg]

This sounds wonderful @BlahBlahBlah. I'm glad it's helped you so much!

 

[perrier]

And what is the safest maximum amount?

 

[BlahBlahBlah]

And what is the safest maximum amount?

There's no set amount but the max I run is 2L a day, my dr prefers me to have under 1.5 a day

 

[BlahBlahBlah]

This sounds wonderful @BlahBlahBlah. I'm glad it's helped you so much!

Thanks

Please indicate how much saline you take
Is it daily 1.5 L

Does taking 1 L work too

How about 500ml?

How many times a week do you do this?

Is there a worry about diluting hemoglobin?

Thanks

there's more info on my original blog post

http://blogfullofhope.blogspot.co.uk/2016/02/iv-saline-for-pots-and-severe-me.html

I run 1L every single day, I find I start feeling better after about 500mls but the last half bag does carry on making a difference. I would still opt for 500mls over nothing but no less than that (that's going from what I feel with my body rather than as medical reccomendation). No worries about diluting HB, you just pee out extra. Good to check electrolytes and if your kidnsey are coping fine with the extra fluid/salt

 

[hellytheelephant]

Am happy for your improvement...and enjoyed your blogpost.
In the Uk we shouldn't have to go through all you have been through to get access to this- makes me so angry! but well done for getting it finally down to your persistence.

 

[Tella]

People have been asking how I'm getting on with IV Saline for severe Me/POTS so I've blogged an update about it http://blogfullofhope.blogspot.co.uk/2017/04/iv-saline-2-years-on.html


#pots #me #cfs #mecfs #ivesaline

Hey I’ve seen that u are still on it
How did u manage to get it on the nhs?
which doc or hospital can I see about it please?
do u have a picc line? Do pots medications work too?