• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

ITV .....Severe ME patient Karen Gordon wants to be fed at home....hospital refuse

Countrygirl

Senior Member
Messages
5,620
Location
UK

https://www.itv.com/news/meridian/2...Va9uyXu9Vd0AvXPbGk_aem_ORy2rtxtJs1_XzZemBVXCQ

Woman in Sussex hospital for six months calls for ME treatment at homeMERIDIAN





WATCH: Karen Gordon speaks about her uncertain future with the condition

A woman from Sussex suffering from ME says she fears she will die unless health services do more to help her.
Karen Gordon from Polegate developed the condition after falling ill with a virus when she was 10-years-old.
Unable to bear the light and unable to feed herself, Karen has spent the last six months in the Conquest Hospital in Hastings.
The 37-year-old wants to return home with the same intravenous feeding she's currently receiving in hospital.
Doctors at the Conquest Hospital say that for Karen to return home on Total Parenteral Nutrition (TPN), she needs first to be assessed by specialists at St Mark's Hospital in London.
Karen's parents, Heather and Michael Gordon, say she's too weak to make the journey.
Heather says: "Karen's view and our view is that they could do it [TPN] remotely by keeping her at the Conquest Hospital, where she is now and St Mark's being in contact with Karen, us and the treating team.
"While the IV feeding is set up, I can be trained on how to put it up safely and use it at home."..............................

WATCH: Heather Gordon wants remote feeding to be set up at their home for Karen
 
Back