“It's unbelievable what humiliation these people have to endure.” German Spiegel article

[Oh well]

You can read it in English or your respective language by pressing the translate button. I saw this post on reddit.com/r/cfs:

https://www.reddit.com/r/cfs/comments/1mpukeq

Here's the link to the article:
https://archive.is/20250813183611/h...t-wird-a-a65d8a5f-c658-4a12-958c-99ed59fa0583

I thought it was a validating but really saddening read, at least in Germany, apparently 90% of ME/CFS patients do not have a doctor or any treatment whatsoever. Unbelievable and horrifying.

 

[linusbert]

i read it, its actually a good interview. very true words spoken by the psych doc.

Praise the Lord my personal situation is not that bad, i got a doctor coming into the house, though not having any clue what to do with me. also my working diagnosis wasnt me/cfs but degenerative myopathy or metabollic myopathy without actual pin pointed disease.. they just dont know.
but that diagnosis allowed for me to get social money and care money. so my apartment is paid ... food is mostly paid but i can compensate with care money. i even got a ewheelchair allowing me to leave home. and the medical system leaves me alone and doesnt force me into mental rehabilitation which would harm my health even more.

 

[Mary]

@Oh well - wow - that's an excellent interview! Thank you for posting!

Many here in the U.S. don't have doctors either. I sort of have a doctor but he can't do anything for me. But he believes ME/CFS is real, so that's something. And he listens to me, so that's something too. But for the most part we are on our own.

 

[southwestforests]

I sort of have a doctor

But for the most part we are on our own.

Yep, both points are in play in my life.