I would say that things most definitely change from week to week, day to day, and hour to hour in my experience. I have noticed some trends, though, and have been able to prevent some of my own waves by figuring out what has caused them.
From month to month, my groups of symptoms are really different sometimes.
From week to week, usually I've been either doing too much or resting more, depending on whether I'm having a change for the worse or better.
From day to day, my overall feeling is often related to how much I did that day, the day before, and how frequently I'm eating and drinking.
The hour to hour stuff I have found in my experience was triggered by something specific, often something I ate. It took me forever to pin down different reactions, because different foods would give me different kinds of increased symptoms and I didn't realize just how many different things I was reacting poorly to. In particular for me, fruits and some sugars give me a weird wave of badness a couple of hours after, even in small quantities. I thought I just always had a wave of worse symptoms around 3pm. Nope. It was the 1pm banana.
Do you find that your bad waves tend to come around the same times in the day? If so, you might want to look at your meal routine and change things around for a while to see if you can find a connection. Might not be the trigger, but it can't hurt. There are other things that have triggered those kinds of worsenings for me as well (activity, certain kinds of movement, heat, etc.).
So I think it is very normal for this illness, in my experience, but I also firmly believe now that those waves are caused by
something and if we can puzzle out what's behind them, we can prevent a lot of that kind of reaction. Best of luck!
