As the title suggest I’ve moved from moderate-severe to moderate over the past month. Maybe even moderate-mild. I know it’s early days, I could slip right back into moderate-severe. Hopefully not though. I’m 23 years old.
I don’t know exactly why I’ve improved, but I’ll share what I’ve done over the past month below.
I’ve walked 5k steps on average over the past month, and 8k on average over the past week. I’ve kept walking because I don’t experience symptoms when walking/after walking, like I did before. Before my average was 2k. I even do some rubber band exercises every day, which I have not been able to do for 6 years (before coming down with ME/CFS).
For supplements/medication, I take these daily:
high dose thiamine
b-complex
amisulpride
I switch between these when I need a boost in energy/to lower my symptoms (my worst symptoms are fatigue/PEM and hyperacusis):
kratom
weed
oxazepam (this I take only once or twice a month)
Apart from this, I’ve spent alot of time outdoors by the sea. I get as much sun as possible. I walk in nature. I do rubber band exercises as mentioned. I eat healthy and I am at a healthy weight, 75kg, 185cm tall. A year ago (I was moderate-severe at the time) I weighed 85kg.
I wonder if my improvements are because of something I’ve done, or if it’s just random. Either way, it’s encouraging. I’ve felt so hopeless so often over these past 6 years. Now I’ve started to feel hope again. I try to rest alot still, I would assume a crash could be right around the corner if I’m not careful…
I don’t know exactly why I’ve improved, but I’ll share what I’ve done over the past month below.
I’ve walked 5k steps on average over the past month, and 8k on average over the past week. I’ve kept walking because I don’t experience symptoms when walking/after walking, like I did before. Before my average was 2k. I even do some rubber band exercises every day, which I have not been able to do for 6 years (before coming down with ME/CFS).
For supplements/medication, I take these daily:
high dose thiamine
b-complex
amisulpride
I switch between these when I need a boost in energy/to lower my symptoms (my worst symptoms are fatigue/PEM and hyperacusis):
kratom
weed
oxazepam (this I take only once or twice a month)
Apart from this, I’ve spent alot of time outdoors by the sea. I get as much sun as possible. I walk in nature. I do rubber band exercises as mentioned. I eat healthy and I am at a healthy weight, 75kg, 185cm tall. A year ago (I was moderate-severe at the time) I weighed 85kg.
I wonder if my improvements are because of something I’ve done, or if it’s just random. Either way, it’s encouraging. I’ve felt so hopeless so often over these past 6 years. Now I’ve started to feel hope again. I try to rest alot still, I would assume a crash could be right around the corner if I’m not careful…
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