I have an unusual bacteria in my blood

[Helen]

I'm still interested. Have you successfully treated it? Did you benefit from treatment?

OK, it´s your thread . Yes, and yes as far as lab tests reflects the tissues.

Edit: There is a study that showed that all ticks that were examined from northern France carried this bacteria. Sorry, I can´t find the study now, but I think it was published in 2016.

 

[Cheesus]

Yes, and yes as far as lab tests reflects the tissues

Did you see a clinical improvement?

 

[Helen]

Did you see a clinical improvement?

As the symptoms from this infection are supposed be from affected mitochondria, I can´t say as I´m also positive for a Lyme infection. I´m also diagnosed with ME so many symptoms are overlapping.

 

[pcmenten]

I don't remember ever having dealings with a cicada ovary

You seriously want us to believe that? What, one of those lost weekends in Vegas?

It has always been my suspicion that I upset a harmony between various microbes.

Interesting that you would say that. When I took Doxycycline, I experienced some pronounced dizziness, especially when standing up and the like. The course of Doxy is done and that side effect has vanished. Strange. Why would treating a bacterial infection cause dizziness?

 

[Valentijn]

When I took Doxycycline, I experienced some pronounced dizziness, especially when standing up and the like. The course of Doxy is done and that side effect has vanished. Strange. Why would treating a bacterial infection cause dizziness?

It's probably a neurological side effect we get from the drug itself, and nothing to do with killing things. I had bad "motion sickness" from doxycycline, to the extent that I would vomit if I tried to read anything or even look at things. It hit about half an hour after taking the doxy, and lasted for an hour or so. I was fine if I kept my eyes closed.

Herxheimer (spirochete die-off) symptoms hit me much later in the day, with fever and hypotension about 12 hours after taking it.

 

[Cheesus]

I spoke with the lab. They had some interesting things to say.

First, they mentioned this is a preliminary report. Apparently one of the problems is that microbes tend to have a fairly low abundance in blood, and bacteria can have quite large genomes made up by a huge number of fragments. As a result, the bacteria with a relative abundance of around 1% would have a lower specificity than those with an abundance of around 10% or more. (Viruses, on the other hand, have much smaller genomes, so tend to have a high degree of specificity).

They are currently in the process of upgrading the bioinformatics procedure that they apply to the raw data, which they believe will give the lower abundance bacteria a greater degree of specificity. So they suggest I hold off on reading too much into those bacteria until we can crosscheck them against a new report, which they hope to have to me by next week.

The cicada bacteria is not something they have come across before (unsurprising). The person I spoke to at the lab (I believe one of the co-founders of the company) said that she would have a look at the research on that microbe if it comes up again in the next report.

Regarding your question, @Hip: apparently you should not expect to see viruses in the blood unless there is an active infection and they are replicating. Of course this only takes in DNA viruses, so there could be an RNA virus in my blood.

Apparently they would not expect to see the fungus Malassezia Globosa in the blood sample of a healthy person, but they do come across it fairly regularly in unhealthy people, which I find interesting.

There are of course no firm answers here - I didn't expect there to be unless something really obvious like borrelia popped up - but there is definite food for thought nevertheless.

I will write to my GP to see if he'll refer me to an infectious disease specialist. However I am sure you can all appreciate that the likely outcome of an appointment with an ID specialist is a vexed doctor who recommends I speak with a psychiatrist.

 

[Cheesus]

Oh and the bacteria propionibacterium acnes, which had the greatest abundance of any bacteria in my blood, is pathogenic (and not just because it causes acne), though they nevertheless see it fairly regularly.

The second greatest abundance bacteria, alpha proteobacterium LLX12A, is a bit of a mystery. It is not something they regularly see and it could have clinical significance, but there is a high degree of heterogeneity between each person, so the presence of an unknown bacteria like that is not uncommon.

 

[Little Bluestem]

In the case of midichloria, it inhabits and consumes the mitochondria of the host.

I think that is something I would be happy not to know.

 

[Cheesus]

I have fresh results that have undergone the new bio-informatics process, which i have attached below.

I am surprised how different the results are this time around. It kind of makes me concerned about the ultimate specificity of the results if raw data can be interpreted so differently - how are we to know it is right this time if it was not right last time?

Some of the bacterial species with the greatest abundance have been reclassified, though not necessarily into an entirely different genus. My cicada bacteria are still floating around in there.

My GP is back from holiday on Monday. I will talk with him about the results to see if he might be willing to trial a course of antibiotics to see what happens.

 

[zaika11]

I have fresh results that have undergone the new bio-informatics process, which i have attached below.

I am surprised how different the results are this time around. It kind of makes me concerned about the ultimate specificity of the results if raw data can be interpreted so differently - how are we to know it is right this time if it was not right last time?

Some of the bacterial species with the greatest abundance have been reclassified, though not necessarily into an entirely different genus. My cicada bacteria are still floating around in there.

My GP is back from holiday on Monday. I will talk with him about the results to see if he might be willing to trial a course of antibiotics to see what happens.

Hi Cheesus, let me know please, how you been, and that do you think about that result after 2 years? I just got a results and also thinking how accurate is it.. I worry because it correlates with my symptoms and treatment much.. but it also didn't find a viruses which I definitely have in blood..