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Hyperacusys

Messages
91
So, my daughter developed hyperacusys
Now I'm reading 2 opinions, so I'm not really sure what to advise her

Is it best to try to retrain the brain? Like @bctjr1993 is advising in this thread ?
https://forums.phoenixrising.me/threads/my-cure-for-sound-sensitivity.60645/
or is it best to stay away from noise as far as possible, like her GP advised her. And this comes from a GP with MECFS knowledge

I think the former is best, but the opinion of the GP matters in this case and I don't want to make the wrong choice in advising her
 

wabi-sabi

Senior Member
Messages
1,458
Location
small town midwest
I stay as far away from noise as I can. I use noise cancelling headphones to sleep. They are a life saver. For me, noise/light sensitivity increases when I am crashed and decreases when I'm not. Getting out of a crash means, as you know, resting.

You cannot retrain a broken brain anymore than you can retrain a broken leg. Both need rest and healing, which for brains means as little sensory stimulation as you can.

Here's a link for brain injury and PTSD that gives a good description. It emphasizes brain rest. https://www.brainline.org/article/recovering-mild-traumatic-brain-injury
 

panckage

Senior Member
Messages
777
Location
Vancouver, BC
hyperacusys has been bad for me when construction has been occurring. When the construction finished it got much better. This has happened twice now