ChrisD
Senior Member
- Messages
- 487
- Location
- East Sussex
Quick bit of context about my illness trajectory:
2016: Virus & CFS/Fibro onset
2017: Severe ME Crash (Housebound)
2018-19: Some improvement with pacing + all sorts of interventions (mostly homebound but able to walk 5 mins to shops, short car rides etc.)
2020: setbacks with thyroid overdose & first Cov exposure. (Worsening, mostly housebound)
2021: 2nd Cov Infection - Awful Long Covid - upstairs bound mostly in discomfort.
2023: Finally find things to Get out of LC - mostly housebound
2024: touch wood - treating Lyme with herbs and attacking from other angles with success.
This year I've been able to build up to going out in the car once a week or fortnight for a few hours to a cafe and scenic views. All other days I am quite mobile and semi healthy around the house - don't feel sick unless I'm in PEM after going out, but sleepy and achey still most of the time.
I have been out a few times as a car passenger for a few hours and not had the typical fight or flight, POTS PEM that I've had so often over the last few years with LC. But the most recent time out I did more walking (literally a few 100m to a toilet across a car park) which was the only variable.
I know I am very deconditioned and have gained 25% extra body weight from LC and Meds side effects. I quickly switched to an anaerobic state from this and consequently had a typically bad PEM/pots experience in the night.
So any tips on how to build my aerobic capacity?
I was thinking about the Levine protocol but that seems like a bad idea now.
2016: Virus & CFS/Fibro onset
2017: Severe ME Crash (Housebound)
2018-19: Some improvement with pacing + all sorts of interventions (mostly homebound but able to walk 5 mins to shops, short car rides etc.)
2020: setbacks with thyroid overdose & first Cov exposure. (Worsening, mostly housebound)
2021: 2nd Cov Infection - Awful Long Covid - upstairs bound mostly in discomfort.
2023: Finally find things to Get out of LC - mostly housebound
2024: touch wood - treating Lyme with herbs and attacking from other angles with success.
This year I've been able to build up to going out in the car once a week or fortnight for a few hours to a cafe and scenic views. All other days I am quite mobile and semi healthy around the house - don't feel sick unless I'm in PEM after going out, but sleepy and achey still most of the time.
I have been out a few times as a car passenger for a few hours and not had the typical fight or flight, POTS PEM that I've had so often over the last few years with LC. But the most recent time out I did more walking (literally a few 100m to a toilet across a car park) which was the only variable.
I know I am very deconditioned and have gained 25% extra body weight from LC and Meds side effects. I quickly switched to an anaerobic state from this and consequently had a typically bad PEM/pots experience in the night.
So any tips on how to build my aerobic capacity?
I was thinking about the Levine protocol but that seems like a bad idea now.