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Well, here I have few doctors available who know all these things and therefore I ask for experiences of people in other countries who will be more updated in POTS and Chronic Fatigue Syndrome.
I guess not all POTS are autoimmune, but that's why I want to do the tests: to know if mine is or not. I believe that with POTS + syndrome of activation of mast cells (even for testing) + positive autoantibodies IVIG should be the treatment option without a doubt but well, in my country I do not think there is such an option nor for the public health system or in private clinics. But it would be too much chance to have POTS + mast cell activation syndrome + gastroesophageal reflux + wheezing ...
The multivitamin in high doses and mycotherapy (treatment with fungi), I say in case they reinforce the immune system as they say they do and can alter the results.
I tried to contact the Mayo Clinic, because they supposedly attend in Spanish and yes, they speak Spanish but not very well and we did not understand anything. He told me that he had to make me an account (I do not know if banking or registering on his page). Registering me was impossible, so I desisted. They did not inform me about prices or anything at all. Let's see if he calls a Spanish partner who speaks English much better than me.
Thank you.
I guess not all POTS are autoimmune, but that's why I want to do the tests: to know if mine is or not. I believe that with POTS + syndrome of activation of mast cells (even for testing) + positive autoantibodies IVIG should be the treatment option without a doubt but well, in my country I do not think there is such an option nor for the public health system or in private clinics. But it would be too much chance to have POTS + mast cell activation syndrome + gastroesophageal reflux + wheezing ...
The multivitamin in high doses and mycotherapy (treatment with fungi), I say in case they reinforce the immune system as they say they do and can alter the results.
I tried to contact the Mayo Clinic, because they supposedly attend in Spanish and yes, they speak Spanish but not very well and we did not understand anything. He told me that he had to make me an account (I do not know if banking or registering on his page). Registering me was impossible, so I desisted. They did not inform me about prices or anything at all. Let's see if he calls a Spanish partner who speaks English much better than me.
Thank you.
