I started getting sick in 2010 didn't know why by 2013 was going into full blown anaphylaxis had chronic fatigue and was having diarrhea all the time i reacted to everything i ate face felt swollen all the time and stomach hurt around the clock full body itching flushing etc... After getting very sick my family discovered black mold behind the walls we all got sick but i was the worst. We ended up getting rid of everything we owned including are cars and moved into a brand new home no one had ever lived in. By that time I wasn't able to eat food anymore I live on pure formula VIVONEX, i was diagnosed with MCAS that was was believed to be triggered by the mold.
I've been on formula for over 4 years, and take all the typical MCAS meds, 40 MG a day of zyrtec, 600 Mg Zantac, 100 - 150 mg of benadryl, 2000 mg quercitin, 10 mg of Singulair, 2 mg of lorazepam, I've tried Ketotifen and my body won't tolerate it. I also take once a day cholstymine and activated charcoal.
But i'm at a point where i'm on formula and on meds and i'm not getting any better im able to keep my body calm but is there anything else that can help with treatment.
I don't really know where else to go, i live in southren california are there any doctors that prescribe the cancer drugs like Imatinib or Masitinib to MCAS patients.
I'm at the point I don't know what else to do besides the cancer drugs, IVIG therapy and not sure after that.
I also have strong MCS, and Get extremely sick around EMF I can't even use my laptop without getting sick.
I've been on formula for over 4 years, and take all the typical MCAS meds, 40 MG a day of zyrtec, 600 Mg Zantac, 100 - 150 mg of benadryl, 2000 mg quercitin, 10 mg of Singulair, 2 mg of lorazepam, I've tried Ketotifen and my body won't tolerate it. I also take once a day cholstymine and activated charcoal.
But i'm at a point where i'm on formula and on meds and i'm not getting any better im able to keep my body calm but is there anything else that can help with treatment.
I don't really know where else to go, i live in southren california are there any doctors that prescribe the cancer drugs like Imatinib or Masitinib to MCAS patients.
I'm at the point I don't know what else to do besides the cancer drugs, IVIG therapy and not sure after that.
I also have strong MCS, and Get extremely sick around EMF I can't even use my laptop without getting sick.